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#2: Having the Conversation

Welcome to the second episode of the Medical Narratives podcast with Dr. Michael Gordon. Dr. Gordon is joined by his colleague Dr. Michelle Hart to discuss Having the Conversation.

Please note that while the first episode is available to listen to without registration, accessing additional episodes will require you to subscribe and log in.

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Morning, my name is Dr. Michael Gordon and I'm one of the contributors to this new enterprise of podcasts in healthcare for the older population.

This is the second of what will be a series of podcasts and I'm fortunate today to have a colleague who once upon a time was a student who is going to join me in the discussion of what I often call having the conversation.

So I'd like to introduce Michelle Hart who's an attending physician in the department of community and family medicine at Baycrest Geriatric Health Sciences and I've worked with on and off for many years and I think what you'll hear from her is a very important perspective on the concept of having the conversation. Good morning Michelle.

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Dr. Michael Gordon recently retired after a fulfilling career as a geriatrician that spanned 56 years, 44 of which he spent working at the Baycrest Center in Toronto. He is Emeritus Professor of Medicine at the University of Toronto. Dr. Gordon is a recognized ethicist and a thought leader on all topics of care of the elderly and end-of-life decisions. Currently, Dr. Gordon provides part-time professional medical consulting mainly in the domain of cognition and memory loss.

#3: Dealing with Death

Welcome to 3P: pills, pearls, and patients where we will discuss current events in medicine, stories from real patient-physician encounters, and gain insight into what it's like being a physician in today's society.

Please note that while the first episode is available to listen to without registration, accessing additional episodes will require you to subscribe and log in.

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Hello and Welcome to Episode 3 of triple P! Pills, Pearls and Patients. Again I'm your host Dr. Marina Malak.

So I struggle to think about when to talk about this topic for today's episode. Today's episode is called Dealing with Death and I know that sounds really cryptic. Nobody really likes to talk about death, but at the same time it's important to talk about it and there's been lots of things happening lately in the world, you know this little thing called the Covid pandemic, that's really highlighted to myself as the family doctor and as a person why it's important to have these discussions about death and dying. Today we're going to talk about dealing with death both as a family physician and as a person because let's be honest, talking about death is kind of scary, and for some people and some cultures for that matter a little bit taboo.
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Dr. Marina Malak is a family physician in Mississauga, Ontario and a lecturer and faculty member at the University of Toronto. She is actively involved in medical advocacy, and is a board member of the Mississauga Primary Care Network. She is also a member of the National Committee of Continuing Professional Development at the College of Family Physicians of Ontario, and a member of the Research Ethics Board at Trillium Health Partners.

She is passionate about patient care; medical education; and promoting mental, physical, and emotional wellness. She enjoys reading, writing, public speaking, puzzles, doodling in her bullet journal, and creating drawings on Procreate.

#2: Paxlovid Primer

Welcome to 3P: pills, pearls, and patients where we will discuss current events in medicine, stories from real patient-physician encounters, and gain insight into what it's like being a physician in today's society.

Please note that while the first episode is available to listen to without registration, accessing additional episodes will require you to subscribe and log in.

  Back to Pills, Pearls & Patients (3P)

Hello and Welcome to Episode 2 of triple P! Pills, Pearls and Patients. Again I'm your host Dr. Marina Malak.

Thank you so much for joining me today on our second episode and it's a pretty timely episode at that. Today I'm calling this episode Paxlovid Primer.

For Healthcare Providers out there you have likely heard about Paxlovid, and for patients you've probably heard about Paxlovid as well. A lot of people are calling it the Covid pill. It's been about two and a half years in the pandemic, oh my goodness, just saying that is strange, two and a half years and we've come a long way.

Do you remember when we didn't even have vaccines for Covid-19. Yeah, now we're giving people triple boosters and some people even four vaccines. We've also come a long way in treatment. I'm sure many of you have heard about the monoclonal antibodies that were being given to treat Covid-19.

Likely you guys have heard of Paxlovid as well as this is the main treatment for Covid-19 right now. In today's episode I want to just give a quick overview of what Paxlovid is, some common things that primary care providers or all doctors should really know about it, and how you can communicate with your patients about Paxlovid.
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Dr. Marina Malak is a family physician in Mississauga, Ontario and a lecturer and faculty member at the University of Toronto. She is actively involved in medical advocacy, and is a board member of the Mississauga Primary Care Network. She is also a member of the National Committee of Continuing Professional Development at the College of Family Physicians of Ontario, and a member of the Research Ethics Board at Trillium Health Partners.

She is passionate about patient care; medical education; and promoting mental, physical, and emotional wellness. She enjoys reading, writing, public speaking, puzzles, doodling in her bullet journal, and creating drawings on Procreate.

#1: The Launch of the Medical Narratives Podcast

Welcome to the launch of the Medical Narratives podcast with Dr. Michael Gordon. Your go-to source for discussions on important issues in medicine and stories from real patient-physician encounters.

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RS Welcome to the launch of the Medical Narratives podcast with Dr. Michael Gordon. Your go-to source for discussions on important issues in medicine and stories from real patient-physician encounters.

My name is Regina Starr and I'm the Managing Editor for www.healthplexis.net and the Journal of Current Clinical Care, the home of the Medical Narratives podcast. I am pleased to introduce the host of Medical Narratives podcast Dr. Michael Gordon.

Dr. Michael Gordon recently retired after a fulfilling career as a geriatrician that spanned 56 years, 44 of which he spent working at the Baycrest Center in Toronto. He is Emeritus Professor of Medicine at the University of Toronto. Michael is a recognized ethicist and a thought leader on all topics of care of the elderly and end-of-life decisions.

Michael is also a prolific writer and a masterful storyteller. He is a regular contributor to the Journal of Current Clinical Care and he will be hosting his own channel within the soon to be upgraded Health Plexus where all of his work will be organized in a curated section.

I've had the privilege to work with Michael the past 10 years.

Hi Michael, I am so excited for the launch of this podcast. Congratulations on this new venture. Welcome.

MG Thank you very much for inviting me.

RS Pleasure.

Telling stories is your thing, so our listeners would be interested to know how you chose geriatrics as a specialty when as I understand, it hardly existed in Canada or the United States at the time you went into it.

MG Well I can say honestly that I didn't choose geriatrics. I've been asked this question many times, I could say that geriatrics chose me and it was like so many things in life, happenstance. I studied in Scotland where indeed we had a geriatrics as part of our clinical experience and I can say that two of my favourite clinician teachers at the University of Saint Andrews Dundee campus were in fact geriatricians. They were marvellous people and it was clear to me in my young medical student days that they were very caring people, but they were absolutely fabulous clinicians and I could say that I learned how to percuss a chest properly from one of them. He played the chest like a drum. So geriatrics found me and it was a collection of events that led me into the field and I wasn't planning to do it in any way, but when the opportunity came up I decided to take advantage of it and literally within a week of acting as a consultant to Mount Sinai hospital for patients potentially going to Baycrest for transfer I fell in love with the field and have been in love with it for 44 plus years.

RS Fantastic. Beautiful. In fact, Mark Varnovitski, who is the publisher of Journal of Current Clinical Care and www.healthplexus.net, he shared a story that he heard from another giant in the field, and another contributor Dr. Barry Goldlist, that you hold the number one geriatric specialty certificate in Canada. Is that true?

MG Well, it's true, but again like so many things it's not as if it was exceptional. I mean it wasn't planned of course, it was an accident of fate. At the time of the first exam there were only I think 10 of us eligible by the criteria and of course the criteria could not include formal training in geriatrics because that didn't exist in Canada and all the applicants as far as I recall none of them had formal training in geriatrics so we were you might say grandfathered in to just take the exam, a written exam, and an oral exam, and the person who actually examined me was a geriatrician, but from Australia and they already had geriatrics, but in any event we took the exam and when we got the Royal College certification there were only five of us who got the certification and as it turned out I was the lowest on the alphabet, G, and because I was the lowest on alphabet I got the first certificate. Well it sounds good, I mean it would have been one of the first five, but it sounds good and I know that my places of work love to say that I was the first certified geriatrician in Canada which happens to be the case, but not because there was something extraordinary about me the first five of us in fact were the pioneers.

RS Fascinating. In fact, my grandmother was the first geriatrician back home in Odesa.

MG Oh really.

RS Yes.

MG How about that.

RS And when she came to Canada, she volunteered at Baycrest for many years.

MG Oh I didn't know that. Isn't that wonderful.

RS So there you go, we have a connection.

MG Yes, well I always say, you have to be careful about making connections and sometimes when I'm talking to people because I like to hear their stories, I say we're going to stop now I can't afford another relative.

RS Well my grandfather on my mother's side came from Latvia with the last name Gordon.

MG Wow, then we really are.

RS So maybe we are Michael.

MG Because those that came that my grandparents came from Lithuania and of course Lithuania Latvia are neighbours and the name was an actual Scottish name that was adopted by Jews who lived in the shtetl Aniksht was named and they took the name because Peter the Great, boy it's in terms of current history, Peter the Great hired a Scottish mercenary by the name of general Patrick I think Patrick Dennis Gordon who fought for him he was in those days mercenary troops and at the end of the wars in the Baltics. People took the name Gordon when they had to during emancipation and they did it because general Gordon became a favourite of the Czar and it was a way of honouring the Czar and I when I lived in Scotland and studied there I tried to look it up and I found the reference to that story. In the history book of Russia and my grandfather when I asked him I was about I don't know 11, 12 years old what was our name before? he said before what? I said well before it was Gordon because most of my friends had names that were changed from Aski and Ozovitz and whatever and he said my great grandfather was a Gordon so it's always been Gordon.

Wow. So maybe indeed you have to find out because if it was Latvia and Lithuania I mean it was walkable almost.

RS Yes maybe we will. I'll ask my mom about that.

MG Yeah.

RS So I want to ask you, we just lived through two years of a global pandemic yes before the pandemic the medical profession was revered, however, during the pandemic we saw the mental, the physical stress, the amplified dangers for healthcare professionals who were on the front lines. Do you feel that the pandemic may have somewhat dulled the attraction of medicine as a profession for young people?

 

MG Oh the pandemic is so complex and you know it's funny I always say to people I'm not a spring chicken. I've been through in my teens, the polio epidemic and I remember as a teenager in my neighbourhood we all wore camphor around our neck. When I tell this to people they laugh. You say why camphor? The whole place smelled of camphor we you know spelled of camphor. It's because it was thought that camphor would keep the virus away. Remember the virus this is early days of pre- virology so we walk camphor and I mean you go to them if we went to the movies which was not something you did lightly, all the newsreels showed people in respirators, iron lungs in gymnasiums, in amphitheaters, because there were so many of them and then of course when the vaccine came out first salk and then sabin it it just changed the world, it changed the world, and then I also lived through a couple of influenza epidemics, the H1N1, and the Asian it was called of course the Asian flu and I was a teenager and I was uh no I was a sorry I wasn't a teenager, I was a young adult, no no I was a teenager, and I stayed at a friend's house because my mother was working and I was really sick I was like in bed for 10 days. So I've been there and because I'm old enough I've watched various infectious diseases.

I can remember whooping cough cases and it was awful. Anybody who says that they don't believe in vaccines, to see a child whooping is painful. So the pandemic changed many things in medicine. I mean the fact that they were able to turn out a vaccine in such a short time is really a miracle of modern virology and vaccine chemistry. It was unbelievable because usually it takes years. What we learned, many things we learned, but what we learned in the field of aging was that in a particular those in long-term care facilities nursing homes and retirement homes suffered especially not just because they were prone to getting the infection and when they did they often got very ill and died, but the places they lived seem to be almost facilities that caused the spread of the disease as if it was an incubator. I mean these people were living in a common space, the healthcare staff were stretched, many of them knew very little about proper precautions. I mean precautions for infection have always been a challenge to especially nursing and just watching somebody and I remember the SARS outbreak because we were closed down at Baycrest. All the hospitals were closed down, is watching them getting in and out of their gowns and their masks and their helmets and whatever is really quite a strain. So that the older individuals in these facilities really suffered, but the main thing besides the illness, which was real, and a high death rate, and I experienced this also on a personal level was the sense of isolation. Isolation, loneliness, depression, people couldn't visit. I can remember visiting somebody who I know very well and she was looking out the window of her apartment in a retirement home and we were looking up and waving and it was like some of the television programs that showed and it was painful because not only could she not see her family, within the building they decreased congregation, meals. I mean it really was when you think about loneliness is a terrible thing and we know in even in Britain they sort of started a I don't know if it's a regulatory committee or something to deal with loneliness, legislation to deal with loneliness because that becomes part of the epidemic of Covid, but any other illness that affects the risk of people living in congregate dwellings.

RS Yeah, it was very difficult the past two years and we have aging parents, the same thing we weren't able to see them. The grandchildren weren't able to see their grandparents. Very difficult.

MG Yes, I know this one person who actually had a couple of grandchildren, no great-grandchildren, births of their grandchildren, could not see them until they were almost six months old. You know I mean they got pictures and you know nowadays you can take a picture anywhere in the world. They got pictures, but that's not the same.

It's not the same. Of course the Zoom meetings and the you know, thankfully the technology was there the past two years because we obviously 1918 was different, but it's not the same, the human contact, seeing people, hugging, it's just not the same.

Yes, no hugging. I mean it's funny I've become used to Zoom, almost everybody's had to and I know many of my colleagues, especially at Baycrest, but elsewhere I'm sure, you know try to do their medicine over Zoom. Some of it can be done. Certainly the talking part.

RS Yes, but how do you diagnose an internal bleed over Zoom?

MG Well that's hard emergencies are hard and for emergencies the fact is you got to get dressed up in all that paraphernalia and anybody who worked in the emerge or the ICU knew you looked like you were going to outer space.

RS Yes.

MG And it's funny because I was a lover of the, even though I know a lot of people criticized that, Grey's Anatomy it was really up-to-date when they got to the Covid epidemic, they were all in spacesuits. Yes, well it's hard to be personal in the spaces I mean I find that even with masks and I'm pretty good at recognizing people just from their eyes, but sometimes that every now and then you see somebody you think I know you who are you and then they take off the mask say oh and you know it's very hard to develop you can't see facial movements. For people who, for example, are hearing impaired people don't realize that all of us do some lip reading, it's automatic. Anybody with any hearing impairment does a lot of lip reading so if you've lost the lip reading ability because of a mask and you're hearing impaired and you're not wearing it I can tell you hearing aids are sometimes very difficult to accommodate to. They can be a mixed blessing, background noise, whistling, and you know I have a lot of older people that it was a real struggle. One to get them accept the hearing aid and then to use them, even though we know that hearing aids are good for you, especially if you've got cognitive impairment. They enhance the ability to understand. I used to say when I was negotiating with a patient who didn't want a hearing aid, I'd say you know if you don't hear it, you can't remember it, and I've seen people who in fact when they did finally have some hearing augmentation, their memory impairment became less severe.

RS Right, so tell me, would you recommend to a young person to go into medicine today?

MG Absolutely, I'm a great proponent of medical careers. I think medicine and it's not fair, I know people who love the law, and love engineering. My father was a fabulous engineer and I learned a lot from him. I even went to an engineering high school because at one point I wanted to do engineering, but medicine is the most satisfying profession one could imagine and I know people who don't like it for various reasons, but if you're interested in people and I'm not just talking about altruism. I mean people say oh I just want to do good. Well sometimes medicine is not so dramatic. I mean saving a life is something special and I can remember the first few cases when I walked out of a you know hospital room thinking I saved a life and I could remember in Scotland the first diagnosis of meningitis I made in a infant. It was not a very fancy hospital it was simple, but I looked down the microscope while this stuff was being this central spinal fluid was being cultured I looked down, I did a gram stain, and there they were and I think it was H. influenza and in those days the antibiotic we use was Chloramphenicol. Now you can't use and Chloramphenicol for all kinds of reasons, but that's a whole other story. But I can remember walking out of the ward and say my G-d, I saved the baby, I saved the life. So medicine is marvellous. It's marvellous for the excitement of medicine, but the best part of medicine is people. The people you meet, the people you remember, the people you talk to, the stories you hear. I'm a big believer in stories.

I'm a writer as a I can say another profession. I love stories and I grew up with a grandmother actually we didn't have a lot of money so I shared a bedroom with my grandmother from Lithuania and my sister and a pet white rat and my grandmother told me stories and I heard all these stories about her growing up because she came to America in her mid-teens. Growing up in Lithuania having Russian cossacks coming through the village and killing people and her hiding in a potato cellar and I heard stories about the early days in the garment profession in New York and that terrible she was a witness to the triangle fire, where the seamstresses were locked into the factory and died. I mean it was marvellous stories and I've always been interested in stories and anybody who knows me, knows they have to be careful of course if they ask me to tell them a story what they're gonna get is a story, and my kids I mean they're I have wonderful children and sometimes you know I'll be telling them something and they say oh dad I know, I know, and I once had a conversation with my eldest daughter of my second marriage, Talia, who by the way is studying to be an anthropologist. Well she is because she has her Masters, but she's doing a PhD and I was telling a story, we're actually on a road trip but I was telling you a story started she said dad I know, I said you know my telling a story isn't so much that you don't know it, but it's important for me to remember it because that story is meaningful for me and sometimes I'm you know watching a movie I'll be asked if I like the movie and I'll say yes and the person says well it wasn't a very good movie I said, but it was for me because it brought back memories. It brought back stories. I made reference I know I can tell what a good movie is, but if the movie happens to take place, for example, in Scotland I enjoy it just by listening to the accent, you know. So I love stories.

RS True, true I do too and I guess that's another thing that connected us. I enjoy your stories and reading your narratives every month. So tell me what are your plans for the podcast? What topics do you think you'll cover?

MG Well, you know there are so many topics one could talk about. First of all, the great thing about geriatrics which is one of the reasons I enjoyed it, separate from the people business, is geriatrics has everything that internal medicine has. That's why you have to do internal medicine first. I mean it's a long haul, it's as long a haul as respirology, cardiology, whatever because you have to do your internal medicine so you have to know your internal medicine and then you do the geriatric component, but the patients you're seeing in a sense you know as a cardiologist and you see old people they have hearts so you've got geriatric cardiology, but in geriatrics you have geriatric everything. They have liver disease, they have GI disease, they have abdominal disease, and the real challenge is understanding the whole of internal medicine with the special components and nuances of geriatrics. I mean examples like and I've seen these cases. I feel sometimes like Jimmy Durante, I've got a million of them, I've got a million, stories of somebody who's come in you know who's a bit confused and they have mild dementia, but they get very confused and I used to see this a lot at the General Hospital I worked where the nurses would say post-operatively, oh mr so-and-so is confused they had a surgery, they must have had a stroke, and my little dictum when I'd see, no you have to think they didn't have a stroke what else could they have that makes them confused. Well one of the most common I mean this is bread and butter geriatrics is they have an infection, a post-operative infection. The only problem is they may not have a fever, in fact, what they may have is only confusion, a dropping blood pressure. So you have to understand the nuances of, for example, infection in the elderly and I mean I've seen so many cases of older people with conditions that are easily missed because the symptoms are not I mean it's known that older women, women in particular, but older women often have heart attacks without manifesting the typical symptoms. So you have to be aware that any change in mental status might be the caused by some medical condition which the condition itself is common, but the presentation is uncommon. So you know, it's such a broad field that it's absolutely marvellous to contemplate it and the learning of geriatric components of internal medicine, nuances of internal medicine, are just challenging and wonderful and satisfying.

RS Do you plan to invite any guests on your podcast?

MG Yes, I would be happy if there was an opportunity to speak to somebody, either within the field of geriatrics or within the field of family medicine with a large patient population of older people and in the real world not unless something special happens, we're not going to have enough geriatricians to look after all the older people, it would be impossible, and I'm not sure it would be a good use of the resources because family medicine especially if somebody's taken the special extra year of care of the elderly gives them the ability to do most of the important work in the care of the elderly and the geriatrician could be the person who's a resource for program development, for educational programs, and to help family physicians including those with care of the elderly expertise to help solve some of the problems, and some of the problems are not purely medical problems, they're psychosocial problems. I know I've heard this from doctors I've worked with over the years, they get upset with families, you know that are asking too much, or asking too many questions. Isn't part of their repertoire and it's something I have to learn as a care of the elderly doctor as you have to ask what you may think is a very simple question to answer, but it isn't I mean most people don't know I'm dealing even as a family member with issues related to family members that have problems and I hear family members talk oh they've had this, they must have had that, and I have to be very careful because you don't want to get into family dynamic conflicts. To say well you know in my experience and whatever, but you know that's the story so as a geriatrician there's a lot to offer to the patient population, to the medical health care population and I know that in my career one of the things I love to do is teach and especially teaching non-medical people. I did a lot of in-service in various organizations for nurses. I have an interest in ethics so I also can bring that to the table because a lot of the problems that come up in the care of the elderly are what we call ethical. What's the right thing to do, conflict over decision-making, who's in charge of decision-making. I mean these are conflicts complex issues, but they're very important.

RS True and how often do you plan to drop these episodes?

MG I have to see how much energy I have. My commitment initially is every month, if I find that I can get all my resources together, I might do it every two weeks. It's you know it's demanding. I like it, but it still takes energy and creativity to do it well.

RS Of course, I know that you are an accomplished author of a few books. If you recall a few years ago we reviewed Parenting Your Parents.

MG Yes

RS Excellent resource for families with aging family members. Are you currently working on another book?

MG Well as we say in the Catskills, funny you should ask. Well actually because I've written so many narratives pieces on medicine, ethics, social medicine issues, personal, human issues, and a lot of them were published in the Health Plexus Journal of Clinical Care as well as other journals. I decided to try to pull them together as a compendium of articles and I fortunately found a lovely student to help me. He wants to study medicine, but this was an opportunity to get involved with editing and organization he says he's learned a lot of medicine from it, that wasn't the plan, but he's a lovely guy and i'm putting together these articles together into a book. It's not quite a memoir. I wrote a memoir called Brooklyn Beginnings a Geriatrician's Odyssey which actually is being updated as well, and I hope to have this new book out. I'm waiting for some final issues to be resolved, but I hope to have it out certainly within this year and then I'm working on my previous three most recent books which was Brooklyn Beginnings a Geriatrician's Odyssey. Late Stage Dementia, which is a book to help clinicians and families deal with the end of life and the end of activity with people who suffer from dementia Alzheimer's disease etc. and then another book which actually I've just finished rewriting and I've submitted to the publisher they did the first edition it's called Moments that Matter and this I decided since I was interested in ethics and often when you're talking to families you try to bring an ethical concept because most people in quotes "want to do the right thing" and as soon as you say the right thing it's not just a clinical right, it's a right that makes them feel that what they've done has been the proper thing for their family member. So I wrote that one and it's just in the process of being reprinted as a new version and so I got a lot on my plate over the next I'll say six months to a year, but I hope that my new book, my latest book will be out by the end of the year.

RS Excellent. Look forward to that. I can attest I have read every single medical narrative and some days I feel like I could become a doctor.

RS So my last question. I know that you have a lot to share with our listeners in your upcoming episodes, however, just to give a quick sample of what to expect, what advice would you give to somebody who is caring for an aging person, a relative with many co-morbidities, even possibly dementia?

MG There are many, many issues. I think that one of the most important and I've written about this and you've read it. I call it having the conversation and I actually went through it with my late father. Having the conversation which means actually discussing openly, not by nuance, not by beating around the bush, what is it that no not everybody knows the answer to their own wishes what would you like if and I know people say oh we can't talk about it it's too morbid. Well it's not morbid until the time comes when you have to make a decision and sometimes children say well I don't really know, I don't know what they want, and I just went through this I just redid my advance directive with my lawyer, but I was just tuning it up a bit, but the idea that you want the person and my family certainly knows, to understand what they would want if, and the ifs can be many. You can't imagine what's going to happen, you know you say well you know when I get old enough I'll die, yeah and if you break your hip and can't walk anymore then what? Does that mean you'll be allowed to die, you'll be in a nursing home, you want rehab, you want to be at home? What about, I have one little scenario anybody who's worked for me says well what if you can't eat anymore? Well you want us to put a feeding tube in you? No, I don't want a feeding tube. So well what do you want? I want to eat, but what if you can do because it's dangerous and they say well if that's the case maybe I'd rather die, and I'll let the family listen. I said listen you have to understand because the person may not be able to make a decision at that time and you the family member becomes the decision maker. So having the conversation and I had it I can remember with my late father after my mother died because the fact is she had a terrible death, unexpected, with all kinds of side effects and we had to decide in many ways on the spot and when my father became ill and my sister who was wonderful looking after him, we had to decide because he got sick and he was going to be going up to the ICU and my sister said you know when they said what do you want to do and she said everything and I said wait that's not what he told us. Remember what he told us and we were able then together say no let's do this and this and if he has a cardiac arrest that's it because that's what he told us and you want to know that without feeling guilty. Anyway, I think that's a whole area of proper conversation and that would be one if there were somebody else who wanted to participate I'd be happy to, if people wanted to send in questions to be posed to me. I'd be happy, however, it works, but the issue in the subject is very important.

RS Yeah for sure and we will dedicate an episode just to these questions because they are so important. So that brings us to the end of this podcast.

Thank you so much for listening. Thank you, Michael. Please consider giving us your reaction by pressing the applause icon. Feel free to post comments or your questions to Dr. Gordon in the comment section below and press the follow button to follow Dr. Michael Gordon. Thank you so much.

Dr. Michael Gordon recently retired after a fulfilling career as a geriatrician that spanned 56 years, 44 of which he spent working at the Baycrest Center in Toronto. He is Emeritus Professor of Medicine at the University of Toronto. Dr. Gordon is a recognized ethicist and a thought leader on all topics of care of the elderly and end-of-life decisions. Currently, Dr. Gordon provides part-time professional medical consulting mainly in the domain of cognition and memory loss.

#1: About Pills, Pearls & Patients (3P)

Welcome to 3P: pills, pearls, and patients where we will discuss current events in medicine, stories from real patient-physician encounters, and gain insight into what it's like being a physician in today's society.

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Hello there and welcome to 3P. Pills, Pearls & Patients. I'm your host Dr. Marina Malik.

So welcome. Today is the first episode of Pills, Pearls & Patients. This is the introductory episode where we'll talk a little bit about myself, my practice and what the point of this podcast is and where it's going.

First just a disclaimer. Anything shared on this podcast is obviously not meant to replace any medical advice. It's the opinions of myself and any guests that we might have and if there are any references, they'll always be provided as well.

Please feel free to share any comments that you might have. Obviously we're aiming for an open discussion here and I look forward to you guys interacting with us for this podcast.

So a little bit about myself. As I mentioned, my name is Dr. Marina Malik. I am a fairly new medical graduate in family medicine. I practice in Mississauga, Ontario. I am a Lecturer and Faculty Member of the University of Toronto, Faculty of Family Medicine and Community Medicine. I'm really interested in teaching and medical education and I don't have any particular interests in medicine and I guess that's why i became a family doctor. I like to do it all from young to old, big, small, mental health, respiratory diseases, endocrine diseases, you name it.

I also do have my own personal blog, Health is Wealth and this is where I talk a little bit about my previous experiences as well as just some day-to-day thoughts. So if you're interested in checking it out it's anorexiarecovery1.blogspot.com

Book CoverI've also written a book which is called Recipe for Recovery, I battled and Overcame an Eating Disorder and You Can, Too! and that's mostly available on the publisher website at burnstownpublishinghouse.com. Again that's burnstownpublishinghouse.com, and eventually you'll be able to find this podcast transcribed so please feel free to read that afterwards if you're interested in any links as well as any information shared in this podcast.

So, what's 3P all about? Well, I mean the name kind of says it for itself, Pills, Pearls & Patients. I guess we wouldn't be doctors if we didn't talk about pills, but let's go further into this. Pills is beyond medication, it's more like the medicine that doctors prescribe daily and increasingly these days we're realizing that pills aren't the end-all be-all. Medical treatments these days are procedures, investigations, medications, and a lot of it is really coming down to patient empowerment, as well as collaboration and education. A big portion of managing any illness or any chronic disease these days is definitely allowing the patient to access resources and empowering them to take control and manage their own symptoms. This might be engaging in exercise, adjusting their diet, ensuring that they have good social supports around them, taking part in hobbies, accessing spiritual care, etc. sleep goes a long way too.

What's the Pearls all about in 3P? Pills, Pearls & Patients. Well I guess the aim of this podcast is really talk about some tips, practical advice for physicians all around Canada. I'm interested in sharing real life stories, what really happens with family doctors and doctors in general when they're in practice. What are our emotions and experiences as physicians remembering that physicians are humans too and as much as we'd like to separate work from personal lives it's not always that easy. What are some day-to-day tips that doctors need to know when they're interacting with their patients? Is there any latest evidence or stories that maybe we can share among physicians to help educate our practice and make us better doctors? Another part of the pearls is the highlights of being a doctor. As difficult as being a doctor is, there's a lot of fun to it. I can only imagine how many wonderful stories we might have if we really highlighted the amazing experiences that we have with our patients, albeit there are some really hard days where we're all tired, but there are also some days where you just find that spark again and you sigh and say yes this is why I entered family medicine. I'm sure all of you doctors listening can relate even if it's just that one patient who smiles on their way out or the patient who thanks you when you feel like you've done almost nothing, but yet they're ever so grateful or the day that you put your hands on a belly and think oh that's definitely cholecystitis. You order an ultrasound and there it is in black and white, suspect acute cholecystitis and you are so thankful that you listened to that medical lecture and that you paid attention in your clinical skills when you were examining patients. There are so many pearls to being a family physician and a doctor in general and I hope that this podcast also highlights some of those.

And finally the last P, Patients. Self-explanatory, we wouldn't be doctors without our patients. Sometimes patient encounters can be difficult. There's so many difficult situations that I've seen and I'm sure you can all relate. There's the patients that don't always take their medications or that are late for their appointments or even worse never show up for their appointments. There are the patients who you are just so frustrated about because you want so desperately to help them, but you're not making any leeway or there are the frustrating really sad cases where you've tried everything and so has the patient and yet the prognosis is still poor and it's ever so heartbreaking. Of course there's difficult scenarios as well. Situations like college complaints, feeling like you and the patient aren't seeing eye to eye and not knowing what to do. Those are the really difficult times and this podcast we're going to share some of those difficult times whether it's to open our stories, increase awareness, or even just to support one another.

But there are also lots of happy encounters with patients. As I mentioned before, the joy of feeling like you correctly diagnosed a patient or seeing a patient's eyes light up when they've managed to lower their A1C at their next diabetes visit. Feeling like they've accomplished something or sharing with you as their doctor that they've just gotten the job offer that they were waiting for. As physicians we're so incredibly blessed to have access to so many parts of patients lives that not many people have a window to. In my own experience as a family doctor I truly feel that patients are comfortable sharing a lot of information with me. I actually take lots of delight in listening to patient stories whether it's about you know their job, their time at work, their hobbies. This helps me as a family doctor feel like I've established that therapeutic relationship with my patient and helps me understand a little bit more about them. I no longer see the patient as just a diagnosis or an illness. I've actually gained a complete picture of who they are, what they like to do, who's in their life, what resources they have, and this really helps me take pleasure in my job.

And there you have it in a nutshell. That's the simple explanation of what 3P is about, Pills, Pearls & Patients. As you can see, the aim of this podcast is not meant to focus on just one specific topic in medicine, one diagnosis, one approach to managing an illness, or patient. It's also not meant to be a time where we just rave on and on and on about how great it is to be a family doctor because like i said we have to be honest. Although I love my job and I take so much pleasure in it there's a lot of days where I'm actually tired and on the edge of being burned out and that's why we have to talk about these stories. We have to talk about the Pills, the Pearls, & the Patients.

This podcast is going to be released on a bi-weekly basis and I really encourage and welcome you to listen to every episode, between 20 to 30 minutes long, shouldn't be too long of a time, but I guarantee that you will pick up at least one pearl, no pun intended, during the podcast that will either make you as a physician feel like you're supported, understood, or heard, will make you think about your current practices whether you can relate to some of the stories or tips that we share and who knows might even spark you to share a comment with us about what I should talk about next. I really hope that you'll join me on this journey, bi-weekly.

As an introduction today, I really just want to highlight why Pills, Pearls & Patients was created. I want to reach out and thank the people at Health Plexus and Lumensify for all their support in making this podcast available. Really, Pills Pearls & Patients, 3P, it's about sharing stories, it's about opening up the floor and talking about things that sometimes are brushed under the carpet in medicine. Sharing stories about what patients and physicians go through is incredibly important. There are a lot of patient stories out there. I guess there are a lot of doctor stories out there too, but sometimes I feel like we don't really hear the doctor stories as much. I was speaking to a colleague the other day and we were explaining to one another how sometimes we really want to help our patients, but sometimes we really feel like we're under attack. Sometimes we feel like we just don't know how to help a patient in the best way or for some reason or one another we're misunderstood. This is really difficult and taxing as a family doctor. Most of us, hopefully all of us, have really good intentions, but for some reason when we don't see eye to eye with a patient, emotions might get expressed in maybe not so much of a positive way. I've seen and heard time and time again how family doctors feel like patients might be verbally aggressive towards them. They might feel like patients are attacking them with what they're saying with their experiences and this is really difficult. It feels difficult as a family doctor to want to help people in front of you, but feel like you're not making grounds with them. We hear so often that patients make complaints to the college of family physicians and a colleague of mine was telling me the other day what if doctors were allowed to make "complaints" about patients. I mean it sounds like a funny concept, but think about it, when doctors are "under attack" who do we go to? The police? Not always reasonable. Who do we tell? Mind you we've made several grounds with this, there's a lot out there that's available to help physicians. There's wellness lines the Ontario Medical Association, the CMPA. We've definitely done a lot of work, but there's still a lot of work to be done.

Sharing stories is important to empower physicians. It's important that any family doctor and doctors in general feel like they're not alone and I'm telling you, you are most definitely not alone as much as we all love our job there's a lot of days where we're tired, and as much as there's a lot of days where we're tired, there are so many days where I look and I say wow I would never give up family medicine for even a day in another job.

Talking about our stories and our experiences doesn't always just have to be about the difficult ones between patients and rounds and paperwork and checking lab results, you get the idea. Talking about our stories could even mean what's the latest going on in the news. I would be completely naive not to mention this little thing called the COVID pandemic. Evidence is changing rapidly. Tune in for the next episode where we'll talk about a brief primer on Paxlovid the treatment for COVID. That's now been dubbed as well I guess one of the most evidence-based treatments that we have.

We also should probably talk about the impact of the pandemic not just on ourselves as patients and physicians, but on society in general. There's definitely a role for everyone to play and I think there's a lot of questions that go unsaid. But aside from the pandemic, there's still a lot going on. Today evidence in medicine is changing rapidly. Do you remember back in the day when you would read a medical textbook or god forbid have to go to a library to do a research project on science. Now the internet is widely available and has that many resources fall into our hands. I guess this can be a good thing because now all you need to do is a quick google search and figure out how to convert a GFR into some other random thing. How to calculate a Framingham risk. You can access many apps for your practice as well. Of course there's also the downside to this which is probably a whole other episode, but when patients use Dr. Google sometimes I'm just shaking my head and i know all of you doctors out there can agree about the time the patient read that they should be sticking who knows what in god knows where in order to help themselves feel better. There's so many stories that we should share about this what to not do and what to tell your patients to absolutely avoid.

Talking about stories in medical practice also helps us know what are the resources that we can use. There's so much out there and I myself have learned an incredible amount of things like apps and websites that I can refer my patients to for extra help and support with their condition. On this podcast we'll be sharing some of those things in several episodes, that way as a doctor you can feel like you're making the most of your practice, using your time more efficiently, and when a patient comes to you and says I don't know what to do for this, you might be able to say, hey do you have an iPhone? do you have an Android? and you can share with them some useful apps that they actually might be able to use. We'll also be talking about some resources online because everyone's online and hopefully this will make your practice a little bit more efficient. It'll also help you empower your patients and have something to give them at the end of the visit.

We'll also be having some guest speakers which I think really increases the amount of knowledge and information that we'll be able to share. And certainly if anyone has any other ideas please share with me.

Sharing our stories on this podcast also helps us think about where we are and where we can move forward. No I'm not talking about writing letters to our MPP because to be honest as great as that sounds, I don't have time for that. Between checking my results and making sure I have my hair brushed for work every day, plus putting food on the table, not about to write a letter to my MPP to be honest. Although by all means, if any of you out there have the time I encourage you to get active in society. This is how we make sustainable change and that's another goal for Pills, Pearls & Patients. I hope that by sharing our stories we can think about what do we need to do as a society, as a strong group of empowered and smart and successful physicians, what can we do to change policy, and hear me out on this one change is underneath our fingers. Together we form a strong collaborative group of professionals who can bring about sustainable change, but change starts with us. It starts with sharing our stories, it starts with getting the word out there that something isn't okay in the way we're practicing medicine. In the way we're treating physicians, in the way policy helps or actually doesn't help us help our patients. And then we go about to eliciting this change to making our stories heard, to striving and working together as a community of professionals in collaboration with other healthcare providers, with politicians, with patients, to bring awareness and to make these changes. Change is happening and it's going to continue happening. Opening our voices and opening our hearts to these stories whether they're happy stories, or difficult stories enables us and allows us to bring about these changes.

On that note, I'm going to end with one final thing, which is each person has different stories. Every physician listening to this podcast will definitely have a different experience than my own or with any guest speakers that come. Some of them might be relatable, some of them might not be. Feel free to take whatever is useful and relatable to you and to contemplate and think about what sounds different. Something that I've learned in my time on earth is acceptance and tolerance are very different things. I'm not necessarily asking you to accept everything that's shared on this podcast. Accept means yeah, you listen to it, and you agree with it. I'm asking to promote a spirit of tolerance, tolerance means you and I might have our differences, but we'll listen to one another, we'll be open to the different experiences that are shared on this podcast. We'll be willing to give and take with conversation so that we can learn from one another, so that we can put our hands together as physicians bring about changes open discussions about difficult topics, learn from one another about the latest evidence, and survive as family doctors because let's be honest, being a family doctor is tough, but it's also pretty great. And with that I'm going to wrap up this first episode of Pills, Pearls & Patients or 3P.

I hope you've enjoyed kind of an introduction of what this podcast is going to be about and I am super excited to get talking next episode about Paxlovid and who knows what's happening after that. Well I guess you'll have to stay tuned every two weeks. Thank you so much for being my guest on Pills, Pearls & Patients and I look forward to talking with you in two weeks. Cheers.

Dr. Marina Malak is a family physician in Mississauga, Ontario and a lecturer and faculty member at the University of Toronto. She is actively involved in medical advocacy, and is a board member of the Mississauga Primary Care Network. She is also a member of the National Committee of Continuing Professional Development at the College of Family Physicians of Ontario, and a member of the Research Ethics Board at Trillium Health Partners.

She is passionate about patient care; medical education; and promoting mental, physical, and emotional wellness. She enjoys reading, writing, public speaking, puzzles, doodling in her bullet journal, and creating drawings on Procreate.

Tales from the Uber Scene

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For the 6 months that I have not been able to drive because of medical reasons I have become a regular user of Uber. I find Uber more flexible and convenient than standard taxis. As regular users of Uber services know, many of the drivers are originally from elsewhere, by which I mean overseas and came as immigrants or refugees.

To anyone that knows me well, my interest in people and their stories plays a prominent role in my modus operendi. Also following many years of travelling overseas as part of my work as an academic geriatric medical specialist, I have learned that there are many interesting stories and points of view to be gleaned from taxi drivers. So it has come to pass with my multiple Uber trips. The point of initiation of engagement is if I recognize an accent and ask the driver from where he came. They often ask me to guess, but I have already had a hint by the Uber app which provides the name of the driver. If it is one of the typical names and the accent fits I may venture to say something like, "the Middle East or Former Soviet Union or Ireland". If I am close or correct I am usually complemented on my guess, with a question such as "do you know my country" which if positive opens the door to the conversation.

Because I have travelled a good deal during my medical school education in Scotland which at the time afforded me may months of free time to travel, sometimes combined with a medical elective experience in the country I was visiting, but also a chance to pick up some of the language, friendships with local residents and a travel experience—which often resulted in friendships some of which are still operative. I also witnessed historical moments like the coup in Greece during the 1960s, the build up to the Six-Day War in Israel and the vote that ousted the regime in Argentina that replaced the prime minister with Carlos Menem who shook the economy with economic reforms. I was in Argentina with my teenage son for a geriatric conference during the time of the election that brought Menem to power and we witnessed the hundreds of police officers patrolling the streets of Buenos Aries, with a favorite hangout of the blue uniformed police being the McDonalds in the Centre of the city on the Avenue de Mayo.

The driver answered, "Turkey-Istanbul, do you know it?" To which I replied with unbridled enthusiasm, "Yes I do, have been there and loved it." He turned towards me in the passenger seat and smiled. "It is a beautiful city". I followed with the question, "do you know the movie Kedi" He turned toward me with a huge grin, "it means cats" to which I acknowledged, "I love cats, we have three Abyssinians in the house and a number of feral cats in our backyard—three consisting of a mother and two of her litter that have adopted us or maybe allowed themselves to be adopted by my wife who diligently feeds and speaks to them. The bond is so close that we have purchased a number of cat shelters for them to increase their comfort which is helped by straw we bought from one of my wife's students who comes from a rural community outside of Toronto. Besides dry cat food many of her friends give her wet food that they have accumulated from their own cat adventures—we try to get them neutered and receive their vaccinations with the clipped ear being evidence that they were caught for this purpose before being released back to their feral home.

The driver and I talked about the wonderment of cats and how they are part of Istanbul life. To observe the seven cats and their litters featured in the movie was a real joy, with the film starting with a picture of kittens waiting for their mamma to return with breakfast—their tiny heads peering through the railing surrounding the birth site. The clips of the cat who ventures to the fish market every morning where the local fishmonger prepares the remnants of the carved fish for the dependable visitor as if it were a guest coming for dinner. Among the most moving scenes were that of people whose lives were either impacted or even saved by their feline companion who through the special sense that cats have of responding to human need.

One moving clip was of a fisherman whose adopted cat helped the small fishing boat captain deal with depression and loneliness, would roam the boat as it churned through the Bosphorus, acting like the queen of the sea as the captain beckons it for a pat. More devotion from an animal towards a human cannot be found—it is unfair to categorize the cat as a pet, it is more like a friend, companion and loved one.

We reached my destination, but not before sharing our common bond in the love of cats and their deserved place in the hearts of mankind—the Turks of Istanbul have done it, we should be able to emulate their devotion and bring the feline joy to our communities and individual families.

Abandoning Treatment Due to Age Alone

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When caring for older adults with comorbidities, especially those at the extreme upper limits of life, it may be easy for providers to lessen the intensity of their curiosity and medical investigation. For some older individuals’ chronic conditions, the odds of a positive outcome may seem too distant or the patient’s discomfort—or, in many jurisdictions, the financial burden—may act as a barrier to the pursuit of answers.

Sometimes it can seem like the answer itself is unlikely to result in any meaningful benefit to the patient. When providers see an older patient with what appears to be a chronic condition, who is physically and mentally declining, it is not unusual for the provider to just accept it as a natural consequence of extreme aging. Patients themselves and their families are willing to accept futility as well, even if reluctantly, when the “verdict” comes from a physician—especially if it is a “specialist.”

One such example of this kind of case—what might be called “beneficent ageism”—occurred in my ambulatory geriatric practice. The patient was 95 years old when I first encountered her in my office accompanied by two devoted daughters who were committed to her care and fixated on the task of trying to allow her to live out most of her life in the communal home (one daughter lived with her with her family and the other lived close by). They were truly doting children.

The patient’s main complaint was cognitive impairment, and she fit the usual criteria for mild dementia with a range of vascular risk factors—she actually was started on and responded modestly to donepezil. With this positive result, it became clear that she had other bothersome symptoms that had, over time, been attributed to her age. For example, she became easily short of breath and had been to emergency rooms (ERs) over the years with what had been construed as heart failure due to a mixture of hypertension with (what seemed to be) mild chronic lung disease of uncertain etiology. She was maintained on the usual collection of vascular enhancers and pulmonary puffers, which afforded her some comfort with the acute episodes that had resulted in ER visits—an extra dose of furosemide and some intensive bronchodilator therapy.

She also had modest anemia, which had never really been looked into and seemed merely incidental. It was treated intermittently with blood transfusion for which no clear etiology was found—she had normal blood levels of B12, folate, and iron but a moderately low ferritin for which iron had been given with minimal benefit to her hematological parameters.

At the age of 97, I consulted with her attending physician and specialists to see what the cause of her anemia was and whether it could be possible that the degree of anemia might be compromising not only to her cognitive function but to her cardio-respiratory function. The daughters agreed that after blood transfusion she always seemed better in terms of her cognition and “breathing,” whereas, when the levels began to fall, she would often be short of breath at rest with little in the way of exercise reserve. Despite a number of enquiries, I could not convince any of the other physician specialists to agree to have her referred to a hematologist. Having heard about the possibility of a bone marrow biopsy with a hematologist, the daughters were even reluctant to intervene with an investigation that might cause her discomfort. I explained the procedure (having had a few myself for personal medical problems) and said, if by chance something were found, it might respond to medication that could stimulate the blood-making process of the body. The hematologist referral was eventually accepted with reluctance by the patient and her daughters.

One day a fax came through with a letter from a nephrologist and the hematologist indicating that they would forego an actual bone marrow evaluation to avoid discomfort but felt that the patient’s minor renal impairment combined with her other chronic disease burden might respond to therapy with erythropoietin.

About 8 weeks later, the patient and her daughters came into my clinic, early for the appointment as usual. When I saw them in the waiting area, they waved at me, and I could not help but note that the patient was not huffing and puffing as I had previously seen her—even while sitting. When their turn came and I could see her close-up, I saw that her skin color was more robust than usual, that she indeed was not huffing as she spoke to me, her cognition was at least as good as previously, and, if anything, the content of her speech and language appeared better. The more communicative daughter handed me a sheet of paper on which numbers were written. “You would not have received these yet as they are only from yesterday, so I copied them down for you—unbelievable.”

Indeed the numbers were impressive with a hemoglobin level that had gone up almost 20 points from the previous 6-month average. Her skin color and conjunctival color was close to normal. But most impressive was her breathing pattern and the animation of her speech. The daughters were beside themselves with glee and the patient thanked me—by name—which she was not always able to do.

There is an adage that goes something like “age alone cannot be used to determine the likelihood of usefulness of treatments.” While it should be understood that age is an important component of decision-making, if the investigation and treatments are not onerous by nature, they should not be discarded simply because of the high-age factor. Indeed, nothing should interfere with a thorough analytical review of possible diagnostic and treatment options for each individual a medical provider encounters.

This article was originally published online at https://www.managedhealthcareconnect.com/blog/abandoning-treatment-due-age-alone

Planning for the Future: Expected and Unexpected

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For those of us who are planners, it seems perfectly natural to anticipate the possibilities of the future and try to take steps to either avoid bad outcomes or implement steps to mitigate deleterious outcomes. My late father, an engineer whose expertise was motor vehicles, drummed into me the importance of timely oil changes—which I do to this day: it is an almost obsession with me. I constantly have to remind my children to keep up the schedule and over time they are getting better at it as I give them visual images of burned out engines, and the need for early retirement due to expensive maintenance costs of their cars.

For those like me who attend to elders as patients, with the usual accompaniment of their spouses and/or children, beyond clinical care, much of my time and effort focuses on planning for the future. Because my clearly defined domain is medicine, that is always the first level of interaction of clinical relationships. However within a short period of time depending on the length and duration of our relationship I try to focus on future planning—in all domains (what is often called advance care planning) and more recently on documentation of all the necessary information that makes it easier for families to cope with the challenging life events including severe illness or death.

During the past few years I have experienced on a personal level and extended family level the risks, benefits and barriers to planning for the unexpected and although foreseen theoretically always seems to be projected well into the future. One has often heard the phrase "Nothing focuses the mind like a hanging", attributed to the 18th century, poet, writer and critic, Samuel Johnson. Some people deal with the knowledge of a new and potentially debilitating or even eventually fatal illness with disbelief or the quest for an alternative diagnosis or as postulated by the Swiss Psychiatrist Elisabeth Kubler-Ross which in the original form included:

The stages, popularly known by the acronym DABDA, (from Wikipedia July 12, 2017):

  1. Denial—The first reaction is denial. In this stage individuals believe the diagnosis is somehow mistaken, and cling to a false, preferable reality.
  2. Anger—When the individual recognizes that denial cannot continue, they become frustrated, especially at proximate individuals. Certain psychological responses of a person undergoing this phase would be: "Why me? It's not fair!"; "How can this happen to me?"; "Who is to blame?"; "Why would this happen?"
  3. Bargaining—The third stage involves the hope that the individual can avoid a cause of grief. Usually, the negotiation for an extended life is made in exchange for a reformed lifestyle. People facing less serious trauma can bargain or seek compromise. For instance: "I'd give anything to have him back." Or: "If only he'd come back to life, I'd promise to be a better person!"
  4. Depression—"I'm so sad, why bother with anything?"; "I'm going to die soon, so what's the point?"; "I miss my loved one, why go on?"
    During the fourth stage, the individual despairs at the recognition of their mortality. In this state, the individual may become silent, refuse visitors and spend much of the time mournful and sullen.
  5. Acceptance—"It's going to be okay."; "I can't fight it; I may as well prepare for it."
    In this last stage, individuals embrace mortality or inevitable future, or that of a loved one, or other tragic event. People dying may precede the survivors in this state, which typically comes with a calm, retrospective view for the individual, and a stable condition of emotions.

What is missing from this time honored construct of the stages of dealing with serious illness or impending death is what plans one undertakes to make sure everything is in place no matter the outcome. Like an impending hanging—one should focus one's mind on the often ordinary and mundane plans to make sure that one's family is not left to struggle with the emotional challenge of loss and have it compounded by incomplete and scattered financial and estate plans without clear direction as to whom one should contact to do what?

Anyone who has been through this process either as the person diagnosed with a serious disease or has witnessed the occurrence in a close family member or friend is likely to recognize the common failures when it comes to proper preparation. One approach that I have found useful when explaining to my patients and their families the importance of such planning is to go through the major steps that are involved, using as plain language as possible. Having a check list guide is another way of making sure that the important issues are addressed and documented.

Although it may seem self-evident, the first step is often dealt with as a crises rather than a well-planned process:

Arranging for the funeral and burial:
I became a convert to the pre-arranged and pre-paid funeral many years ago after I arranged it for myself—as a way of avoiding my family having to deal with such an emotionally fraught process in the time of crises and mourning. I found through the process I went through that the funeral home was very organized, dealt with all the issues and at the end provided me with the necessary documentation and contact numbers so that when necessary one phone call and the account number would assure the process would take place as I had wished it, not under the duress of making decisions such as type and expense of the casket. As an aside, pre-paying results in a financial saving as the payment is in current dollars not an inflated price in the future. If the person in question travels a lot it is worth paying the slight premium for return of the body to one's home town from anywhere in the world which could potentially cost a great deal.

Contacting critical people:
Aside from contacting close family members the critical people I am referring to: One's lawyer; financial advisor(s); insurance agent; bank manager; wills executor and accountant. With the help of this team, most if not all if the issues related to death and the issue of interpretation of the will, procedures around the release and distribution of assets can be undertaken in the most time efficient and non-emotional fashion. One should discuss the important points with the spouse or children who would be survivors to make sure everyone who should be in the loop of decision-making is properly prepared and informed. Arrangements for immediate cash-flow should have been anticipated and arranged so that there is no problem with paying necessary expenses while awaiting the final distribution of assets.

Making necessary documents readily and clearly available:

This is one of the most important steps in the estate planning process, one of the most difficult and tedious and the one which if not done well can leave one's loved one's high and dry or at least spending lots of trying to find important documents. Of the necessary documents that must be found as soon as possible during the latter days of a loved one's illness and after the death of a loved one is:

  1. Powers of Attorney for personal care and for finance and any evidence of preferred wishes for the end of life period.
  2. After death:
    a. Funeral arrangements: funeral home and burial site, will and name and address of Lawyer (who will usually have an original copy of last will). It is often worth considering taking on that lawyer in at least an advisory capacity to work through the nuances and facts of the will as the lawyer is likely to have had conversations with the deceased as to priority wishes prior to death. Sometimes there may be an estate document that explains some of the preferences and wishes to the executer to try and steer him/her in the right direction as the details of the will are implemented
    b. Name of bank(s) and accounts in which loved one is primary (even if joint accounts)—and check books so that co-owner of account can readily access money during the period after death
    c. Insurance agent to make sure insurance policies that will be in force will be acted upon with the insurance company
    d. Accountant to make sure final tax return will be done properly and in a timely fashion
    e. Investment advisor(s) to make sure necessary accounts can be dealt with and estate implementation can begin for the surviving family and estate planning if they do not have their own estate manager and account manager(s)
    f. Trust arrangements if they exist
    g. Charitable donation arrangements that might be ongoing after death and their parameters
    Some of the processes may take a longer time than might have been anticipated so that it is important to make sure that what amount(s) of available money is documented and where it may be situated and what organizations or agencies have to be notified as to death so that regular payments can continue or be cancelled or changed in terms of payer.

Practical tips:
Gathering all of the pertinent documents into one binder or file would the usual way of gathering and making available this information. Putting it into an Excel spread sheet would be another way and keeping that file readily available would be more contemporary way of doing it. Using one of the many commercial products available to facilitate a digital record might make the task easier and allow for easy editing and updating and if done properly make it hard to hack or disrupt the record that may be kept in a digital format.

One product among others I am impressed with is LifeBank™. There are a number of apps for IOS and Android and on line portals for keeping a record of medical reports, etc. There are what are called ehealth Wallets—a la Microsoft's HealthVault, Apple Health and Google Fit. There a variety of apps like myPHR, WebMD and Humana. Each suffers from a deficiency in one way or another. Clearly being on line via the cloud exposes all one's medical info to the "world" of hacking—now so widespread and pervasive. Many of the apps are also focused on fitness. Others, like the Humana, concentrate on a record of claims made.

LifeBank™—whose tag is Collect and Protect—can be used as a data key, totally off the cloud, or retained on one's computer or laptop. Either way, it contains a suite of forms providing a complete record from A to Z of all aspects of one's life. One significant and noteworthy feature of LifeBank is that one can scan into it—or via a cut and paste—all manner of documents including all of one's health-related records. Inter-activity with one's hospital or clinician is immediately enhanced! Leaving aside the value and security of being armed with all the information about oneself 24/7 in the event of an emergency, medical or otherwise, one's nearest and dearest—or an appointed trusted person like one's lawyer or accountant—can also be provided with a copy data key (for safe-keeping) or know where to access it should it become necessary. LifeBank is structured as a formatted document which reminds the user of the categories that need to be documented.

Conclusion
End of life planning is difficult enough although once undertaken most people can express their wishes and preferences to their loved ones and those who will be their substitute decision makers. Having the final medical preferences, documents such as the advance directives (living wills) and the estate planned information readily available will make the emotionally difficult task of implementing all the components of an estate plan will help make sure it goes as smoothly as possible.

Treating Patients as Real People, Not a Collection of Symptoms

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When you enter a car showroom, a salesperson may identify you as a small-car buyer or a second-hand car buyer, or, if you're known to the dealership, perhaps as a solid every-three-year leaser. With a label in mind, the salesperson will approach you in a particular way. The same can be said of the barista who knows which customer is a "decaf latte" and who is a "dark roast with two creams"—or, in my case at my local Tim Hortons, a medium with two milks in a refill, often with a "good morning" that includes my name. (It's only at the drive-thru window does anything beyond my coffee preference enter the conversation, because I know some of the other servers and will ask them how they're doing in school.)

It's not uncommon to see the same dynamic in medicine—perhaps less so in emergency rooms or ambulatory clinics, but especially on medical wards where one begins what could become an ongoing relationship between physician and patient.

It's understandable that physicians and nurses are primarily concerned with the medical conditions they're responsible for treating. We develop languages that help us identify these conditions, and our shorthand often turns a person with an illness and personal worries and concerns into an organ system with deficiencies that require repair. It's easy to understand the dynamic that leads to the old-fashioned and much-criticized characterization of "the gallbladder in room 203."
So how does one get around the pressure to focus on the illness affecting a person rather than the person who happens to have an illness?

Part of the answer might lie in the long training of health-care providers, when a focus on the humanities should supersede, for a substantial period of time, the focus on what is in essence the scientific underpinning of medicine. Along those lines, I have read a definition of medicine that resonates with me. To paraphrase, it says medicine is a human, interactive and dedicated profession that's informed by science. In some ways, this contrasts with more standard understandings of medicine as the science of preventing, curing and treating diseases.

Whichever approach one takes, it's important to never forget Emily Dickinson's poem about surgeons: "Surgeons must be very careful, when they take the knife! Underneath their fine incisions, stirs the Culprit—Life! "

Another key reason why the patient's identity is so important is that it strongly affects how and why they may respond to medical interventions and the people providing their care.

As well, individual stories of lives lived make medicine a most wonderful profession. The multiple stories are part of the woven and sometimes miraculous fabric of this healing profession.

The dictum I use when teaching medical trainees dealing with a patient who is unknown to them, which I have found works wonders (other than in extreme situations when no time can be spent on anything other than immediate medical intervention), is to start an interview with, "So who are you?" rather than the usual "How are you?" This allows the often-surprised patient to tell the physician a bit about their life and values through their own personal narrative.

It can also cement the personal relationship between patient and doctor (and family, when they're part of the initial discussion). After adequate time is taken to develop a personal rapport, the business of "medical science" can take place on a platform of personal identity and valued personhood.

It's vital to good medical care.

This article was originally published online at http://www.cjnews.com/

A Few Degrees of Separation

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I have often talked about how important stories are when it comes to medical care. We must, of course, use the best available medical knowledge to benefit our patients, but I believe it is also important to find the humanistic aspects of care and build on them, in order to foster human relationships.The importance of learning the patient’s personal story is key to achieving this goal.

Instead of asking a new patient, “How are you?” I recommend asking, “Who are you?”—meaning, “What is your story?” Recently, before meeting a new patient, I tried to see if his name would tell me anything about who he is. Having spent many years travelling, I can often relate to people if I get a clue as to their background or nationality—which, for people with European backgrounds, is reasonably easy for me at this point in my career.

I looked at his name and could not be sure of his origins, but I thought it might be close to Greek, or at least Mediterranean. To my surprise, his wife, who appeared initially to be more outspoken, said, “we are Egyptian.” With my knowledge of Egypt, I felt comfortable enough to ask, “Are you Coptic or Jewish? The name does not appear Muslim.” The patient seemed surprised that I actually knew about the various ethnic groups in Egypt. I told him that I had lived in Israel for a number of years, so knowing about Egypt was important for many reasons.

Their eyes lit up and he said, “We are Egyptian Jews.” After I inquired further, they said that they left the country just as Gamal Abdel Nasser came to power in the 1950s and began expelling most of the country’s remaining Jewish population.

“There are only few remaining Jews in Cairo, with members of one family being responsible for maintaining the main synagogue. We knew the family, the name of which is Haroun, and the elder sister died recently so the younger one is the primary caretaker of the synagogue, along with a half a dozen or so other Jewish women—there are no Jewish men left in Cairo,” he said.

When I mentioned that some of my friends and colleagues are Coptic, he said that they were very close to the Coptic community, both being minorities and beleaguered communities in a predominately Muslim country, but had managed well for centuries, prior to the explosion of pan-Arabic nationalism.

When I retold this fascinating story to one of my Coptic medical colleagues, she said she would mention the story to her parents, without naming my patient, but but would inquire about the Haroun family.

The next morning, I received a text saying that her mother knew the Haroun family and went to school with the remaining sister. As it turns out, Magda Haroun is still involved in keeping the local synagogue active (an interview with her, titled Closing the door: the last Jews of Cairo, can be found on YouTube).

When I mentioned the follow-up to the story to one of my Coptic friends, he mentioned that he too knew the family and told me that there are in fact eight remaining Jewish women in Cairo and that Magda Haroun is the community leader.

The story reminded me that there are often only a few degrees of separation between us, and that a little searching can bring out wonderful stories (elders are often the repository of such stories). We must find these stories whenever we can, as they are our collective human legacy.

This article was originally published online at http://www.cjnews.com/