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Three Highly Distinguished Physicians Join the Dementia Educational Resource Advisory Board

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Health Plexus.net, the leading Canadian Network of Health Education resources is pleased to announce the addition of three highly distinguished physicians to its Dementia Educational Resource advisory board.

Dr. Howard Bergman was recently appointed the position of Chair of the Department of Family Medicine, at the Faculty of Medicine, McGill University. Dr. Bergman was also the first Dr. Joseph Kaufmann Professor of Geriatric Medicine and is Director of the Division of Geriatric Medicine at McGill University. He is also Director of the Division of Geriatric Medicine of the Jewish General Hospital and an investigator at the Centre for Clinical Epidemiology and Community Studies and at the Bloomfield Centre for Research in Aging of the Lady Davis Institute at the Jewish General Hospital in Montreal. He is also Adjunct Professor in the Department of Health Administration at the Université de Montréal and Invited Professor in the Faculty of Medicine at the Université de Lausanne in Switzerland and the Faculty of Health Sciences, Ben Gurion University of the Negev, Beer-Sheva, Israel.

In the area of dementia and Alzheimer’s disease, Dr. Bergman’s research interests focus on early diagnosis. He is the founder and co-director of the Jewish General Hospital/McGill University Memory Clinic and is a Past President of the Consortium of Canadian Centres for Clinical Cognitive Research (C5R). In November 2007, Dr. Bergman was asked by the Quebec government to set up and chair a task force with the mandate to propose an action plan on Alzheimer’s disease and related disorders: from prevention to end of life care, including the research agenda.

Dr. Fadi Massoud is an internist-geriatrician who received his medical degree from the University of Montreal in 1992, and completed his internal medicine residency and geriatrics fellowship at the Universities of Montreal and McGill in 1997. He then did a research fellowship in cognitive impairment at the Sergievsky Center at Columbia University in New York under the supervision of Dr Richard Mayeux.

Since his return to Montreal in 2000, Dr Massoud works as staff geriatrician at the University of Montreal Health Center (CHUM) and the Montreal Institute of Geriatrics. He is associate professor of medicine in the Department of Medicine at the University of Montreal. His main topics of interest are cognitive ageing and dementia. He is scientific director of the memory disorders clinic at the CHUM. He is member of the Quebec Consortium for Alzheimer’s Disease and Related Neurodegenerative Disorders, and primary investigator of the CHUM at the Consortium of Canadian Centers for Clinical Cognitive Research (C5R). He participated in the Second Canadian Conference on Antidementia Guidelines in 2004 and in the Canadian Consensus on the Diagnosis and Treatment of Dementia in 2006.

Dr. Noel Rosen is a family physician in active practice in Toronto. Lecturer in the Department of Family and Community Medicine at the University of Toronto. He is also the Medical Director of the Valleyview Long Term Care facility in Toronto, as well as attending physician, Seniors' Health Centre, North York General Hospital, and active staff, and member of Department of Family and Community medicine Executive Board, North York General hospital, Toronto. In addition he is a Member, Continuing Medical Education Committee, North York General Hospital in Toronto.

About Health Plexus:
Comprised of 1000s of clinical reviews, CMEs, bio-medical illustrations and animations and other resources, all organized in the 34 condition zones, our vision is to provide physicians and allied healthcare professionals with access to credible, timely and multi-disciplinary continuing medical education from anywhere and on any media consumption device. The Dementia Educational Resource is the compilation of high quality clinical reviews, online CME programs, library of original visual aids, interviews, roundtable discussions and related conference reports.

Special Mentors in My Life: the Path to Geriatrics and Dementia Care

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I am reading the biography of a well-known author. Like other biographies, one of the wonderful aspects of such writing is appreciating those people who have had a profound influence on the life of the person whose biography is being read. We all know about the usual influences from family members, teachers, friends, colleagues and sometimes people whose influence was one of those haphazard accidents of circumstance and nature. Sometimes it might be a book or lecture, movie, poem or piece of music that has had such an impact on a person’s life that they attribute who they are, in least in part of that particular person or event.

I can identify a small number of people, events or books that had such a profound influence on my life and I sometimes wonder what would have happened had those influences not occurred. Of course I had a number of teachers in primary and secondary school that were inspirational and supportive of my inquisitive nature as well as some who were quite suppressive of my interests that were somehow outside the formal structure of the school system. One example of a suppressive spirit was an English teacher I had in junior high school who after reviewing the books proposed for in-depth book reports as a special project literally “forbad” me from reading Thomas Wolfe’s classic Look Homeward Angel which I had in fact already read, but because of her dictum was not able to use it for the book report—her motivation was her self-internalized Catholic beliefs and the negative view of such a book by the Catholic Church—such a prohibition would not be acceptable currently, but at that time had a profound influence on me as she told me the book was “evil” when I had found it inspiring—both components of the event influenced my views of the Church which had not been particularly positive as a young Jewish boy knowledgeable of the history of the Church in Jewish history, the events of the Inquisition, and most recently the Holocaust. Wolfe remained one of my favourite authors throughout the rest of my developmental years. The official Catholic prohibition against the reading of certain books was reversed by an official Papal decree published on the 15 June 1966.

The negative influence of certain teachers, books and events which often had the opposite effect of the intended or expected was more than balanced by those individuals, books and events that helped nurture those aspects of my personality and value systems that ultimately were instrumental in my ultimate choice of profession and my deeply ingrained value systems which were incorporated into my personality inclinations.

It was in my first year at Brooklyn College, that I entered in 1958 after graduating from the exceptional Brooklyn Technical High School which set the stage for my life-long interest in science, engineering and the desire and ability to “fix things” a character trait supported by my father’s engineering profession and his personal capabilities as a perpetual “fixer” of all things that had a mechanical source of function. The two first year college teachers were quite different, but their influence was similarly profound. I had entered college as a pre-medical student which was a decisive change in my original post-high school goal that was to apply for a degree in engineering, in the footsteps of my father. This decision was changed by a book I read during my last year of high school which profoundly changed my educational directive and in essence the course of my adult life.

I do not recall the reason I chose to read The Citadel by A.J. Cronin. I was an avid reader, but why this particular book caught my attention is no longer part of my recollective capacity. It may very well have been one of those events that “just happened”, the book was there and it looked interesting. The result was dramatic. I suddenly thought about studying medicine rather than engineering which had been my direction. Soon after I read the book I visited a dear friend, a girl about whom I had romantic fantasies, but who looked to me as a close friend which in the absence of the alternative coming to pass I cherished. I mentioned to her my musings about medicine and she said with great certainty and passion, “You would make a much better doctor that engineer—do it”. I left her house and within about 10 minutes I pondered her statement as I arrived home where I informed my parents about my decision (which during that 10 minute walk had been finally determined). I could see that my father was pleased, but he was not a very verbally expressive person. My mother said, “Oh it is such a long time of study”, but I got the sense that she was pleased as well. At this point there were no doctors in my extended family although other than my mother all of my immediate elders despite coming from immigrant uneducated parents had finished at least undergraduate university degrees. So this would be a new venture for my extended family that ultimately produced a number of physicians—including a very close first cousin and a number of second cousins.

The decision on my part to study in Scotland was the result of spending six months traveling around Europe during my junior year at Brooklyn College, an undertaking stimulated by one of my first professors in social sciences in my first year required course. Edgar Z. Friedenberg, who beyond mesmerizing me in his classes and stimulating me to want to travel, engaged me on my return from my sojourn through Europe that eventually completely changed the direction of my life and studies, as a research assistant for one of his seminal books, the Vanishing Adolescent published a year after I left for medical school. He had such a profound influence on my thinking and the range of my intellectual interests that I felt honoured that he kept in touch with me, even arranging a couple of trips with him to overseas destinations while I was studying medicine in Dundee Scotland. He left the United States and immigrated to Canada to teach at Dalhousie University. His move to Canada mirrored a similar move I made in 1968 also for the same reason—in opposition to the Vietnam War, not as a pacifist, but because I felt the war was a terrible mistake of United States policy.

In medical school in Dundee had a number of mentors that influenced my views of medicine and my approach to the concepts of the “story” of medicine and during my post-graduate years my views of the relationship between the humanities and medicine. The renowned Sir Ian Hill, our professor of medicine taught the art of the lecture that enchants, elevates and deeply engrosses an audience into the mysteries, meanderings and miracles of medicine. His description of the famous Zermatt typhoid fever outbreak of 1963, the year after I started medical school, will never be forgotten and still acts as a model for me for the wonders of the sleuthing required of public health challenges. It was Professor William Walker, our head of Midwifery (Obstetrics and Gynecology in North American parlance) who during my final oral examination asked me why I had a Scottish family name that allowed me to weave my family’s genealogy tale to the point of using up all of my time short of one quick obstetrical question and that resulted in the 500 pound prize. That windfall ultimately financed my trip to Israel that resulted in my connecting to the country in a way that had an impact on my life as almost nothing else has in my adult years.

It was another William Walker who went from the Department of Medicine in Dundee to Aberdeen who I followed there for my first house job (internship) who had the profound influence on my appreciation that one could combine a love for the humanities and medicine. While in Dundee he gave a series of after-hours lectures on “Humanism” which had a profound effect on my world view, already having been primed by my previous exposure during undergraduate education and range of reading. I was so impressed with him that in the culture and practice of post-graduate training in Scotland in those days I deliberately requested on a personal basis that he take me on in the department he was to head in Aberdeen, which he did, and that turned out to be one of the best clinical experiences of my career.

It was the five months following my Aberdeen house job that had the most profound effect on the trajectory of my life. With the 500 pound prize that followed my midwifery examination, I received permission to use it to fund a second “house job” in midwifery in Haifa Israel, a place I had visited as a medical student two years previously. It was during that student visit that I had an epiphany in terms of my identity. Although I was raised in a Jewish family, mostly of secular Jewish persuasion other than my paternal grandparents, I had not a particular interest in that identity other than from the strong historical and cultural ties that I felt. I had a strong sense of the importance of the Holocaust on the history of my people, but Israel itself held no particular powerful attraction to me as it did for many other people with my background. However, in response to many questions from family members why I did not visit Israel while already being on the “other side” of the Atlantic I decided to combine one of my summer medical training experiences to include Greece for a month with a follow-up month in Israel which was “just across the Mediterranean.”

I had arranged to work at the Rambam Hospital in Haifa, named after the great ancient Jewish medical scholar and sage also known by his more complete name (Moses ben-Maimon, or more commonly Maimonides).

The profound experience I had occured on the second day after settling into my small prefabricated hut that acted as housing for interns, residents and visiting students like me. I went to the beach that was adjacent to the hospital which sat on the Mediterranean shore and as I looked around at the throngs of people, many with small children, somewhat reminiscent of my exposure to Brighton Beach where I was raised, I had a sudden wave of recognition. I thought to myself, even though these people were strangers, “these are my people”, every single one of them. When I went on the local service bus the next day I had the same revelation. I kept looking at the different faces, clearly from different parts of the world, light skinned like myself, Slavic looking women with high cheek bones, but fair eyes, dark skinned men with almost black eyes, all speaking what I knew must be Hebrew despite my limited exposure to that language during my upbringing other than what I learned mostly by rote for my Bar Mitzvah. I kept thinking, “I share a history with all of these people”.

I started working the next day and met the head of the department among other members of the staff. Professor Aharon Peretz welcomed me warmly, asked about my heritage and established that he and my grandparents came from Lithuania which I could see meant a lot to him. He asked me what I wanted to learn and when I said “anything and everything” he said I could shadow him in all his clinics as well as other members of staff and if I wanted to assist him in the operating room that too would be fine. I could not believe my good fortune as being in the operating room at that point in my studies was still an exciting option which I did not have that much access to at medical school. I did not realize that the interns on the service would be more than happy to have someone else stand during surgeries and hold retractors which for me was still very exciting as the professor explained everything that he was doing and pointed out all the anatomic landmarks that I had seen only on my anatomy cadaver.

I learned a lot during that month and was given a great deal of latitude in what I could do. I observed Professor Peretz interview patients with various gynecological problems who had been holocaust survivors and were applying for reparations. I noted that whatever the condition which he was very good at explaining to the patient in Hebrew or Yiddish or Russian or it seemed whatever language was necessary, he then explained to me and then signed the necessary reparations form which I learned went to an adjudication committee in Germany which decided on the merits of the claim. When I naively asked if all the conditions were Holocaust related, he paused for a moment, looked at me deeply, drew in a breath and said in perfect English, “As far as I am concerned, every gynecologic problem that afflicts these women either directly came from the holocaust experience or was exacerbated or complicated by that experience. I could see from the look on his face that he felt this was a mission of his to make some sort of amends for what these women had experienced during their years as prisoners, refugees, people in hiding or just experiencing the cold, hunger and monumental trauma and grief related to those dark years of their lives. I only found out later that he was one of the key witnesses during the Eichmann trial in Israel in 1961-62. During a recent visit to a special exhibit at Yad Vashem (the Holocaust Museum) in Jerusalem I saw a picture of him bearing witness at the Eichmann trial, and seeing him there brought back a flood of memories of my time with him in Haifa.

When I left to return to Scotland, I recall the great sense of a new chapter of my life opening up that I did not realize was there. On my return to Dundee I had not formulated a definite plan of return, but knew that in one way or another I would be back to the country I had discovered resonated in my inner-most consciousness. After I received the prize in midwifery and confirmed with my professor that I could use the 500 pounds for a repeat visit to Israel to do in essence part of my internship in obstetrics and gynecology, my plan began to solidify. I would do my first 6 months of post-graduate training as a house-officer under the supervision of Dr. Walker the internist-humanist who had moved to Aberdeen where he agreed to take me on, and then I would return to Israel, a visit I looked to with great anticipation.

Dr. Walker in Aberdeen had a profound effect on my approach to medicine, but also to all the people with whom he came into contact. It was from his modeling and style that I realized the importance of acknowledging and asking the opinion of nurses with whom we were doing rounds, a practice that I integrated into my style of practice after witnessing its positive impact on the staff during that six month period. He deferred at times to the opinion of the head nurse and always sought the input and opinions of the house officers with whom he did rounds, sometimes writing in the chart that a certain idea or suggestion came from one of us—something I had never witnessed before from a staff physician. He could be critical in a very instructive way, but when he praised me for something I did he gave me such a lift and that too became part of my practice-style when I entered into the role of a medical teacher and mentor.

As I came closer to my career choice I had the various influences of rotations, specialties and probably most important the mentors in my life. As it turned out when I ended up settling in Toronto, rather than pursuing a career in nuclear medicine which I had come for, but soon found that the lack of patient contact made it not particularly attractive for me. It was then the influence of two wonderful physicians in Toronto that pointed me in the direction of geriatrics: the first was Dr. Abe Rapoport, an internist and kidney specialist that I had met and gave a lift to in Jerusalem just prior to my move to Toronto, ostensibly to learn nuclear medicine and bring it back to Israel where it had not yet been developed in any substantive way. While driving him back from Hadassah Hospital where he had given a seminar that I attended to the centre of Jerusalem I mentioned that I was going to spend a couple of years in Toronto. He said, “If I can help you when you are there, please feel free to contact me.”

After a number of months doing nuclear medicine it became clear to me that it was not a specialty suited to my medical interests and personality, I did seek out the advice of Dr. Rapoport. After I told him about myself he suggested I look into Geriatrics and contact the people at Baycrest while at the same time pursuing a chief residency position that I became aware or at Mt. Sinai Hospital. When he mentioned geriatrics as something that might satisfy my desire to continue in a broad based specialty in internal medicine and not focus on just one organ system or realm of diseases (such a specialty in infectious disease might provide) I conjured up recollections of the wonderful geriatric unit in Dundee where among other things the staff physicians were among the best in the medical school and the patients were delightful—often referred to with endearment as auld wifies.

I followed up with a visit to Baycrest and when I was offered the position of chief resident at Mt. Sinai Hospital with which Baycrest was affiliated I requested of my second wonderful mentor, Dr. Barney Berris, the head of the department with whom I would be working if I could do the Baycrest consultations who were at Mt. Sinai while I was working for him. He agreed and besides being a mentor in terms of gentleness, clinical brilliance, and warmth he helped me formulate my career in geriatrics which when I passed my Royal College examinations that fall, resulted in him and another mentor, Dr. Henry Himel, the chief of medicine at Baycrest offering me a conjoint position which I accepted—thus determining my career path.

For many years my roles and path of academic development moved in a very satisfying direction with areas of great satisfaction in many domains especially in teaching and writing. I had always had an interest in writing, but with my academic roles the opportunities grew and I was able to undertake initially academic articles and then in 1981 my first book was published, Old Enough to Feel Better: A Medical Guide for Seniors. With it a new aspect of my career was launched that of author and over the years since that time a number of other books in addition to articles for the professional and lay press where the objects of my writing interests, all of which reflected my experiences in medicine and the care of the elderly.

As the various challenges of geriatric medicine began to coalesce in my practice I became increasing interested in the ethical aspects of eldercare which resulted in my completing a masters in ethics which was soon followed by an interest and the incorporation into my clinical and administrative practice palliative and end-life care—with all these threads of these special interests intersecting in a very meaningful way.

This eventually resulted in the focus of my clinical care, ethical deliberations, writings and teaching to become increasingly focused on dementia, especially the later stages where special aspects of care and caring come into play and where ethical conundrums become very common. The culmination of these influences has been my most recent book, Late Stage Dementia: Combining Compassion, Comfort and Care. The result has been a dramatic shift in my approach to my clinical ambulatory practice and focus on my teaching of trainees who accompany me in the clinic and my role helping those in our palliative care unit understand the special challenges of caring for those with non-malignant disease especially those with dementia, an increasing challenge in the long-term care system.

I have been very fortunate along the path of my career to have had many teachers and mentors who have inspired, guided and influenced me on the path that finally became my own and now gives me the opportunity to do the same for my students and medical trainees. It goes back to one of the tenets of the teaching of medicine, that one has the duty to learn and then the duty to teach so that the continuity of the wonderful art and science of medicine is assured for the future.

Dr. Michael Gordon is currently medical program director of Palliative Care at Baycrest, co-director of their ethics program and a professor of Medicine at the University of Toronto. He is a prolific writer with his latest book Late-Stage Dementia: Promoting Comfort, Compassion, and Care and previous two books being Moments that Matter: Cases in Ethical Eldercare followed shortly on his memoir: Brooklyn Beginnings-A Geriatrician’s Odyssey. For more information log on to www.drmichaelgordon.com

Being Rich, Famous or Smart: No Immunity from Dementia

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I can usually anticipate where the conversation is going when a family member accompanying a loved one living with dementia to my clinic starts the conversations with the words, “Surely, in this world of modern medicine, there is something more we can do to halt the decline in my (fill in whichever family member is effected). Sometimes this phrase is said with a degree of anger, sometimes with anguish and sometimes with a degree of aggressiveness as if somehow I, a geriatrician, and not a neurologist or psychiatrist might be inept in my knowledge or “holding back” on some new discovery that I do not know about. Sometimes the question is accompanied by a package of internet-based articles on “new or novel” treatments for dementia ranging from megavitamins of the already known and touted category (and generally proven ineffective in the evidence-based medical literature) or a concoction with a mysterious ingredient that “doctors won’t talk about” as they work in cahoots with the pharmaceutical industry.

Usually, even though often quite time consuming, a careful explanation of the state of the knowledge of treatment of dementia of the various kinds (the most commonly defined being Alzheimer’s disease), the person can be brought back to the reality of the current state of affairs. Most times they can be brought to focus on the real challenges that will be faced as the course of their loved one’s condition declines and they must face the very difficult decisions that will ultimately occur including planning for challenging behaviours well beyond the cognitive decline and the inevitable need to plan for end of life care that almost always occurs at some point in those who reach the later stages of dementia.

I recently saw the movie, The Iron Lady that looks at the developmental and political life of former Prime Mister of the United Kingdom, Margaret Thatcher, from the vantage point of her experiencing the earlier and then later stages of dementia. It vividly portrays the impact the disease has not only on her behaviour, memory that includes a very poignant and vivid melange of past recollections and current experiences. This is something all of us working the field recognize in our patients and which we must often explain to their family members. One often hears the lament, “She can remember in great detail her sea voyage as she escaped the ravages of the war in Europe or her childhood run-in with her brother in the village in the Ukraine, but cannot remember what she had for breakfast today”.

Sometimes the intrusion of experiences from the past can cause great agitation and behavioural outbursts and sometimes can lead to warm and sometimes tearful recollections about loved ones that they think are still alive and are distraught to find that they have died. This is something illustrated in The Iron Lady when Thatcher’s daughter has to remind her mother of her late husband’s death as she struggles with emptying his clothes from the closet and donating his previous belongings that she can associate with in her memories of him that enter and leave her consciousness as she struggles to recall the events of the present.

The movie with the stunning role of Thatcher played by the incomparable Meryl Streep stirred a sense I have had previously as I observed some of the greatest or best known minds or public figures in the world afflicted by the usually devastating effects of one form of dementia or another, most often of the apparently Alzheimer type. This has helped me explain to the family members of my own patients that “surely me” with their scepticism that either medical science can be so limited or I can be possibly “out of date” in my knowledge of contemporary advances in the disease. It becomes evident to them that some of the most famous and wealthiest people in the world when afflicted with this condition, suffered in the same way as their loved one, despite presumably having access to the greatest medical experts available in the field.

In my own lifetime I remember the gradual decline of the late President Ronald Reagan who those of us in the field suspected he was beginning to develop symptoms of the disease as in his public appearances he seemed to rely more and more on the side whispers of his wife Nancy, the first lady, in a way reminiscent of what occurs in our office visits of many of our patients who when asked a relatively straight-forward question quizzically turn to their loved one, often unconsciously for the answer or to support the answer that they bring forth. We often use that common manoeuvre by our patient as a pretty sound clinical indicator of problems with cognition even though it can be quite subtle and the spouse (most often or sometimes it can be a child) may not even be aware of their response to support the ability of their loved one to function cognitively, although when asked directly they usually acknowledge that occurrence as part of their communication interaction.

Of interest is the family conflict over when the late President demonstrated some impairment of his previously sharp mind and wit and facility with words. The difference of opinion expressed and documented by his two sons has led to differences of opinion among them and has become an historical talking point- the question being– when did the 40th president begin to become mentally impaired by the disease? He was formally diagnosed with Alzheimer's in 1994, five years after he left office. Reagan died 10 years later at 93. His two sons differ in their opinions on when the symptoms first began but the controversy is not unlike that which all of us that practice geriatric medicine and deal with dementia see in our own practices as family members differ as to when a loved one first manifested some evidence of loss of cognitive function. With the variability in the course of the disease which for some starts with what is often called mild cognitive impairment which in many but not all gradually evolves into obvious dementia which itself can have a variable course depending on its own trajectory or one modified by the use of so-called cognitive enhancing medications, it is not surprising that in retrospect it might be hard to define definitely when the symptoms of Alzheimer’s dementia were clear in someone with such a public profile as the late President.

The film The Iron Lady reminded me a bit of a previous film in which the main character was a famous author, Iris Murdoch. In the film, Iris, the progressive decline of this gifted writer into the depths of deepening dementia is witnessed by her husband, played as it were by the same actor that played Margaret Thatcher’s husband, Jim Broadbent—a gifted and talented man who may have learned a great deal about the condition now that he has played a role in essence similar stories, both replete with movement from the present to the past. Both films capture important aspects of dementia and the powerful impact of such a disease on the person of such intellect and talent.

In my own personal associations with dementia two of the great mentors of my medical career developed dementia in the latter years of their life—despite lives and careers of great accomplishment and intellectual challenge and productivity. One physician was instrumental in my choosing geriatrics as a career, almost inadvertently and the other in arranging for my early association with Baycrest Centre which became the focus of my clinical and academic career.

Lastly, my own father who had a profound influence on every aspect of my personality, emotional, and intellectual development and character traits suffered from dementia in the last part of his life providing me with the opportunity to experience as a loving son and sibling of my most devoted sister who was the “it” in his care as he lived out his last years in a Chicago vicinity retirement home under her watchful eye aided by a most devoted personal care worker. It is through his life’s last experience that I get much of my fervor about the importance of “having the conversation” about the wishes and life’s values with those we love who are living with dementia so that when the time comes for difficult decisions at the end of life to be made, we, the loving family members who are the substitute-decision makers will have the strength and courage and devotion to their expressed wishes or value systems to act to promote compassion, comfort and caring at the end of the struggle with dementia.

For those of us who must respond to those family members who interject the “surely, there must be more that can be done for my (father, mother, aunt etc.) in this world of modern medicine, we who carry the responsibility of providing the best of available medical care, can draw on our collective personal and professional experience to provide an acceptable response to the questioner. To be able to recount the lives of the rich and famous and talented to confirm the limits of modern medicine allows us to demonstrate that even they have had to live with dementia in the same way in essence as the loved one in question. We doctors, along with their family member will care for to the best of our abilities and within the confines of contemporary medical practice, those that are living with dementia throughout the course of the disease as they enter the last stages of their life.

Dr. Michael Gordon is currently medical program director of Palliative Care at Baycrest, co-director of their ethics program and a professor of Medicine at the University of Toronto. He is a prolific writer with his latest book Late-Stage Dementia: Promoting Comfort, Compassion, and Care and previous two books being Moments that Matter: Cases in Ethical Eldercare followed shortly on his memoir: Brooklyn Beginnings-A Geriatrician’s Odyssey. For more information log on to www.drmichaelgordon.com

Reflections on 2011

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Most year end reviews come at the end of December. At that time I was working full speed as an attending physician on our hospital’s general medical service and never saw the light of day. Immediately afterwards, I took over an extremely busy geriatric consult service. However, I am now back from two weeks of rest and recuperation in the sun and once again capable of stringing words together.

This past year was a momentous one for several of my colleagues who became members of the Order of Canada or Ontario. They are all exceptional physicians and scientists who are more than worthy of the honours they received. What about the rest of us, who work hard and feel successful, but labour in relative obscurity? What about our recognition?

In fact, I believe that most of us know that we are recognized by that most important group, our patients. I have been practicing medicine as a specialist since 1979, and I still feel that we are part of a noble profession. I still feel that if I go home after a ‘good’ day, it is truly a win-win experience, for me and my patients. We have the opportunity to work in a field that allows us on a daily basis to help other human beings, and unlike others in the helping/caring professions (e.g. social workers, teachers), we are among the highest paid professionals in society (although more would be even better!). Not only are we helping people, but the work itself is intellectually demanding and satisfying. I am hoping the daily intellectual demands of medicine will protect me against dementia in the future (although some of my colleagues feel it is already too late for that).

For me, the most surprising part of practicing medicine is the tremendous amount of respect we get, from our patients and society at large. This contributes to the ‘psychic’ pay (as opposed to money pay) that we receive for our jobs. Sometimes, however, we take this respect for granted, and in hospital at least, expect our patients to agree with everything we say or do. In effect, we expect sick hospital patients to grant us respect even if we do not earn it. I am starting to enjoy the ‘difficult patients’ who demand explanations and reasons for my actions. They remind me that in most person to person interactions trust is earned, not granted just because of a position and title. I am trying more and more to explain my thought processes and reasons to all my patients, especially in those areas where evidence is sketchy and treatment may not be beneficial.

Enjoy this new year, and I hope some of you become members of the Order of Canada!
Regards,
Barry Goldlist

Dementia and the Holocaust: What to do with those memories?

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Dementia poses many difficult challenges and choices to those living with the condition, and to those who are close to the person who has the disease. No one is spared the collective experience that dementia often causes when individuals and their families and friends and those in the role of professional caregivers are faced with as a result of the many cognitive and behavioural challenges that are often poignant and terrifying. During a recent media interview on the subject of behavioural symptoms associated with dementia and the array of potential interventions including medication therapy, I described to the media interviewer the special challenge that I have encountered when trying to address the complex and often terrifying events that affected holocaust survivors as their distant horrific experiences come to the forefront of their consciousness. This is usually much to the dismay of those caring or living with them who often seek some respite from health care professionals to help their loved one find relief from the horrors of their memories.

The interviewer, presumably as a way of categorizing the anecdote I was describing to her of a recent patient I saw in the clinic said, “Oh, I guess it is a post-traumatic stress disorder experience” which I agreed to without really having the chance to dissect and realize that the analogy was at best superficial. I realized that the comment an analogy did not fully capture the profound impact that the holocaust experience had for many of the older patients I care for and the effect that those life events of the holocaust itself added to what was for many a previous life as an outsider in a world in which they were never really welcome and for which the holocaust was a final devastating chapter on top of a life of fear and insecurity. I concluded to myself after the discussion that there was a different element to surviving the holocaust, especially in those from Eastern Europe that multiplied the concept of post-traumatic stress disorder as a way of understanding their experience of the holocaust and how it effects their life as they develop symptoms with dementia with its cognitive disruption and ultimately behavioural manifestations.

Most people who suffer the various iterations of post-traumatic stress disorder (PTSD) had prior to the event that was traumatic a reasonably “normal” life experience. That does not mean that everyone had a quiet, safe and sedate life but most did not have an experience of a comparable magnitude that was deemed to be the type of stress that can be categorized and sufficient to cause PTSD. Among the common events to which this syndrome has been ascribed is war and how it impacts soldiers who have survived,, people who have lived through natural disasters that resulted especially with the loss of life, either of close family and friends or of entire neighbourhoods or communities. For some it may have been a violent and close encounter as may occur in a capital crime such as a witnessed murder or the tragic loss of a loved one in other tragic events such as a motor vehicle accident. Whatever the cause, usually the preceding life experience was nowhere near the magnitude of the tragic occurrence as the event itself.

The difference that I have seen with many of the holocaust survivors that I have treated for dementia and related conditions is that prior to the holocaust they had witnessed or been subjected to a vast array of life-threatening, life-demeaning or harrowing experiences related to virulent anti-Semitism that was often rife in the communities that eventually succumbed to the holocaust period. However, there were some stark contrasts between different European communities and how the holocaust manifested itself. Those Jews that lived for example in most of Eastern Europe experienced severe and often individually murderous and harmful anti-Semitism long before the holocaust period as part of ambient culture and strong negative bias towards the Jews. For others such as the Jewish population of Germany that had endeavoured to be absorbed and accepted into the general community, the “shock” of rabid anti-Semitism and harmful actions was for many difficult to fathom or accept.

For many of the holocaust survivors that I have seen in my clinical practice, the memories of the past are often something that plagues them as the present and the ability to recall new items is lost and all they have to dwell on is the past. I remember one patient, a Polish holocaust survivor whose family was endeavouring to find a live-in support person to look after their mother as part of their commitment to try to keep her at home rather than have her admitted to a long-term care facility for which she qualified. They were looking for someone who could speak to her in her early spoken languages as with the dementia taking its toll, her English which in any event had not been well developed gradually slipped away and she reverted to her mother tongue which was Yiddish with Polish being remembered, but not used often.

According to the daughter in the distant past they had a Polish speaking housekeeper for her mother with whom she got along with quite well and there were never any problems between the two. The daughter found a Polish speaking person to be a support worker/caregiver to live in the home with her mother as a Yiddish speaking caregiver could not be found and those from other backgrounds that they spoke to were not able to communicate adequately with the mother for a relationship to develop. The daughter was very pleased to interview someone who had the qualifications she was looking for as a care provider who also spoke Polish. To the shock and horror of the daughter within a few hours of the person beginning her first day on the job she called the daughter and said she was being screamed at and cursed by the mother and wanted to leave which she did as soon as the daughter arrived.

The mother was in tears and shaking as she explained to her daughter that she was exposed to an anti-Semite and was fearful whenever the caregiver opened her mouth and spoke to her in Polish. She kept reiterating the threat she felt from being in the presence of someone speaking Polish and was sure the person had the intent of hurting her. No amount of explanation by the daughter was sufficient to calm her mother and get her to understand that they were no longer in Poland and that this woman was not a threat—needless to say the Polish caregiver did not return and an English-speaking Filipino woman with lots of experience and a gentle disposition was found with whom the mother managed to communicate adequately for her needs to be met.

To summarise my point, in order to provide an appropriate and sensitive level of care, when dealing with those patients who suffer from dementia and who are holocaust survivors, treating physicians and caregivers must understand that although there are some similarities between Holocaust survivors and those suffering from PTSD, there are many differences that need to be recognized as well. A more robust understanding of and attention paid to the pre-holocaust experience must be included in the evaluation of behaviour so that appropriate steps can be taken to minimize negative and frightening associations with past experiences.

Dr. Michael Gordon is currently medical program director of Palliative Care at Baycrest, co-director of their ethics program and a professor of Medicine at the University of Toronto. He is a prolific writer with his latest book Late-Stage Dementia: Promoting Comfort, Compassion, and Care and previous two books being Moments that Matter: Cases in Ethical Eldercare followed shortly on his memoir: Brooklyn Beginnings-A Geriatrician’s Odyssey. For more information log on to www.drmichaelgordon.com

Announcing the Expansion of a Comprehensive Dementia CHE Resource

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HealthPlexus.net
For immediate release:
January 11th 2012


Celebrated specialist in geriatric care is to lead further expansion of the educational resource with a focus on Dementia.

HealthPlexus.net, the leading Canadian Network of Health Education resources is pleased to announce the appointment of Dr. Michael Gordon as the Editor-in-Chief for the network’s Dementia Educational Resource.

As an author, ethicist, clinician and an educator, Dr. Michael Gordon is recognized as a Key Opinion Leader in the area of Geriatrics and Dementia specifically and brings a wealth of experience and knowledge that he will channel towards the further development of the educational programs for our members based on the recently conducted Members’ Needs Assessments.

“Dementia is a very complex and progressive disease with health, psychosocial, economic and ethical implications for families, caregivers and the patient that we will try to cover from these various perspectives”

-Dr. Michael Gordon, the Editor-in-Chief of the Dementia Educational Resource.  Dr. Gordon is the Medical Program Director of Palliative Care at Baycrest Geriatric Health Care System

"It's clear to all that the heaviest burden rests on the shoulders of primary care and family physicians and our hope that we will be able to address their needs by offering relevant content and programs that match their interests."

-Dr. D’Arcy Little, the editorial director of HealthPlexus.net and its sister publication, the Journal of Current Clinical Care. Dr. Little is a family physician, diagnostic radiologist and medical writer. He completed fellowships in Care of the Elderly and Academic Medicine

"The rapid, almost epidemic, increase in dementia cases, resulting from our aging population, will be the major medical challenge of the 21st century, impacting our society. We aim to make the HP's Dementia educational resource a trusted source for timely and practical Continuing Medical Education and development."

- Dr. Barry J. Goldlist, senior member of the advisory board for HealthPlexus.net [Geriatrics and Dementia] and the Journal of Current Clinical Care. Dr. Goldlist is a nationally recognized geriatrician with a long standing interest in medical education and medical journalism. His geriatric practice has a focus on dementia.

The aim of the resource is to provide primary care practitioners and specialists alike with timely and practical, easy-to-access and on-demand tools in dealing with the growing number of patients who have Alzheimer’s disease and other Dementias. 

Dr. Gordon will be assembling together a working group of professionals interested in knowledge transfer. If you feel you are able to contribute intellectually to this initiative we would like to hear from you.
Please click on the following link and fill out the form to let us know your interests and the capacity in which you will be able to contribute:
Contribution to Dementia Resource


About Health Plexus:

Comprised of 1000s of clinical reviews, CMEs, bio-medical illustrations and animations and other resources, all organized in the 34 condition zones, our vision is to provide physicians and allied healthcare professionals with access to credible, timely and multi-disciplinary continuing medical education from anywhere and on any media consumption device. The Dementia Educational Resource is the compilation of high quality clinical reviews, online CME programs, library of original visual aids, interviews, roundtable discussions and related conference reports.

For more information, please email: contactus@healthplexus.net

How Can You Remember What You did not Hear?

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A lot of effort goes into alerting people to the symptoms of Alzheimer’s disease and other causes of dementia. Organizations such as the Alzheimer Society have done a commendable job in helping the lay public as well as health care professionals as to what the symptoms and signs are in people showing evidence of possible cognitive impairment and urging them to see seek assistance, assessment and advice. Among the cardinal symptoms that most people now recognize as potentially pointing to such a clinical problem is memory impairment. In fact for many lay people their concept of dementia focuses almost exclusively in memory rather than the various behavioural symptoms that may also be indicators of underlying cognitive impairment such as depression, agitation, easy irritation and a wide range of other apparently “mental health symptoms”.

It is well recognized that hearing impairment is a common phenomenon in the older population. Many individuals have at some time in the their later years recognized a degree of hearing impairment and many do seek advice and may eventually undergo hearing enhancement and routine follow-up by qualified health care professionals in the field of hearing such as audiologists and Ear Nose and Throat physicians who may provide regular monitoring in addition to what may be done by a family physician. There are however a great many elders who deny that they have a problem or who, for one reason or another, choose not to wear hearing aids and they and their family members may just accept the need to raise one’s voice and repeat things in order to communicate. It is this group that may present with a concern about cognitive impairment that health care providers as well as family members must be alert to in order to provide proper interventions and to avoid erroneous assumptions about their cognitive status.

It was a bit of an unusual clinical situation, two patients in a row that I was evaluating because of concerns about dementia based on observations by family members of apparent problems with memory demonstrated significant problems with their hearing. In one situation the hearing issue was evident as soon as I started doing my interview but in the second circumstance it took a while and some probing to ascertain that hearing impairment was an ongoing issue but did not on the surface to cause much in the way of problems, at least according to the patient and family.

In both situations after my interviews which included seeing the difference between speaking to the patient face on so my lips could be read and speaking to them “sideways” which of course occurs commonly during various types of conversations it became apparent that they were “filling in” the gaps from their hearing using other clues such as body language and lip reading.

It reminded me of the long process of getting my late father to acknowledge that he had a hearing problem and finally accede to some sort of amplification system. For the years that he was still living alone in Brooklyn when I would phone on a weekly basis to “catch-up” on his progress and function it was clear that he was having problems hearing the phone conversation even after we had the phone modified with an amplification device. On one of his visits to Toronto I arranged a formal audiology examination and the result confirmed the hearing impairment. I had explained to the audiologist that my father was an engineer and very knowledgeable about how things “worked” and claimed that his hearing was fine so that convincing him of a problem would not be easy. A the end of the examination the audiologist demonstrating her respect for his knowledge and understanding said to him, “Mr. Gordon, you are correct that your hearing is adequate, but your discrimination is very poor, that is your ability to distinguish between the different sounds creating a problem in your ability to actually interpret what you are hearing.” He accepted the explanation but remained resistant to any amplification system such as a hearing aid.

In both of the patients that I saw on that morning, they had in the past been tried with hearing aids but rejected them because they were either “uncomfortable” to use or had a lot of “noise” that made them difficult to tolerate. The children acknowledged some attempts in the past but just accepted that the rejection of the devices was the end of the story and did not associate what was clear to me to be significant hearing impairment to their current complaints of memory deficiency. Each of the families were especially concerned that when they had conversations in person or on the phone, sometime after the parent acted as if there had not been a conversation and could not remember “what was said or agreed to when for example a meeting was being arranged.”

The formal mental status examination in both cases revealed some deficiencies but not of a degree that might necessarily warrant medication intervention or a firm diagnosis of dementia. I then put on each patient a Pocketalker which is a simple amplification device that through earphones and a small amplifier the size of a pack of cards allows conversations to be amplified. The device I use in my office is in fact the one that eventually I obtained for my father and for more than a year it improved his hearing and quality of life substantially.

In each case, with the device in place and the volume turned up modestly there was a look of surprise on the face of the patients and an acknowledgement that they could hear better and they could answer questions without the previously noted hesitation prior to wearing the amplifier.

Each family promised to rent for a trial or purchase the device and see how things were over the following few months after which I would do another assessment. Whether the amplifier will resolve the apparent memory problem completely remains to be seen, but as I have often said to families and patients, “If you did not hear it, you cannot remember it.” Even if there were a component of cognitive impairment along with the hearing deficiency, improving the ability to hear would only enhance whatever other interventions would occur to improve cognition and function.

Dr. Michael Gordon is currently medical program director of Palliative Care at Baycrest, co-director of their ethics program and a professor of Medicine at the University of Toronto. He is a prolific writer with his latest book Late-Stage Dementia: Promoting Comfort, Compassion, and Care and previous two books being Moments that Matter: Cases in Ethical Eldercare followed shortly on his memoir: Brooklyn Beginnings-A Geriatrician’s Odyssey. For more information log on to www.drmichaelgordon.com

A Generalist in an Age of Specialization

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November 6, 2011

Last week I had the opportunity to attend the 6th Canadian Conference on Dementia (CCD) in Montreal.  Like its predecessors it was a fabulous meeting.  The two co-chairs, Ron Keren and Sandra Black, did a phenomenal job, and attracted many of the top people in the field as participants.  I am very interested in dementia, and in fact work in a Memory Clinic in Toronto on a weekly basis.  However, I was clearly several levels below many of the participants in my knowledge and expertise in the field of dementia.  This is in fact not surprising, as I subspecialized in Geriatric Medicine because I wanted to focus on all of a person’s problems, rather than those caused as a result of dysfunction in a single organ system.  However, that more diffuse focus comes at a price.  My hospital just attracted a new behavioural neurologist just out of her research fellowship.  This is in fact her first full time job, and yet she is far ahead of me in the dementia field.  This made me a bit uncomfortable at first, but I have reconciled myself to my place in the field.

However, knowing my own inferior level is one thing.  What would really upset me is the thought that I am providing second rate care for my patients at the memory clinic.  However, I do not think that I am, and my experience is possibly generalizable to other fields.  First, there is evidence going back to the 1980’s from Seattle that general medical optimization of patients (most of whom are elderly) with dementia improves cognitive function, often for a prolonged period.  This is what I bring to the clinic, however, I think I provide good assessments of patients with dementia as their only active issue as well.  How am I able to accomplish this?  By working closely with the experts.  As a group we have decided on a standardized way to approach both the history and cognitive testing.  I am constantly cued to ask the right questions by a template created by a more expert colleague (thank you David Tang-Wai).  But the real power comes from the interprofessional conference after the clinic has ended.  Detailed case discussions with a neurologist, geriatric psychiatrist, and allied health, means that all aspects of the case are reviewed before a diagnosis and plan of action are put in place.  The learning opportunities for the non-expert such as myself are enormous, and are particularly valuable because of their clinical relevance.  I have learned more at these conferences than reading journals or even attending the CCD.

Is this model generalizable?  I think so.  Just considering two of the major issues facing our older patients, diabetes mellitus and congestive heart failure, leads to obvious areas where geriatricians, general internists, and family physicians could work side by side with specialists and make an important contribution, and on occasion even improve the quality of care.  An example of the latter effect would be the work of George Heckman showing the high prevalence of cognitive impairment in a heart failure clinic.  Often treatment failure in such a setting requires alternate means of ensuring medication adherence (dosettes, blister packs, supervision), rather than increasing medication dosage.  The ability to learn from each other can also improve care in other settings as well. 

Still, I had better learn a bit more to avoid embarrassing myself in front of junior colleagues!

Regards,

Barry Goldlist

Radiology on the front lines

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I am currently preparing to present two talks at the Ontario College of Family Physicians Annual Scientific Assembly in Toronto, on November 25th:
 

1. Radiology on the front lines - Emergency Medicine. “An Introduction to Stroke Imaging. Saving the Brain. “

2. Radiology - Focus on the family physician's office ;"What tests to order and what to do with incidental findings".

If you are there, please drop by and say hello. I hope to see you there!

D’Arcy

As the World mourns a Great Man We Issue a Call to Create a New Educational Resource

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Steve Jobs, the co-founder of Apple, died on Wednesday after a courageous battle with cancer at the age of 56.

Steve Jobs represented many things to many people: a technological visionary, a cultural icon, the list of his accolades can go on; however, most of all, for the purposes of this discussion, he represented the millions of cancer survivors who continue to follow their dreams, live their lives, and contribute to the world each and every day.

Jobs was diagnosed with a rare form of pancreatic cancer in 2004 that was curable with surgery. However, what we are finding now is that Jobs chose to treat his tumor with a special diet while exploring alternative therapies. “It’s safe to say he was hoping to find a solution that would avoid surgery,” says one person familiar with the situation. “I don’t know if he truly believed that was possible. The odd thing is, for us what seemed like an alternative type of thing, for him is normal. It’s not out of the ordinary for Steve.”

There was no serious alternative to surgery. “Surgery is the only treatment modality that can result in cure,” Dr. Jeffrey Norton, chief of surgical oncology at Stanford and one of the foremost experts in the field, wrote in a 2006 medical journal article about this type of pancreatic cancer. It is reported that Dr. Norton performed the surgery on Jobs in July of 2004. Then in 2009 Jobs needed a liver transplant, but the slow-moving form of pancreatic cancer most likely came back or spread, ultimately claiming his life.

Jobs contributed amazing things to technology, but he also showed the world that there are effective treatment options for this rare disease. He showed that one can go on to live many years and productively.

In 2005 Jobs delivered Stanford University’s commencement speech.

“Remembering that I’ll be dead soon is the most important tool I’ve ever encountered to help me make the big choices in life,” he said. “Because almost everything—all external expectations, all pride, all fear of embarrassment or failure—these things just fall away in the face of death, leaving only what is truly important.”

These are powerful words. What is also evident is that Cancer is indiscriminate and can strike at any age, and can claim the lives of our mothers, fathers, children, our neighbors, and prominent members of our society way before their time. As a six-letter word, cancer is perhaps one of the most feared diagnoses once can receive.

As we continue developing HealthPlexus.NET and the Journal of Current Clinical Care we would like to propose to establish an Open Forum on Oncology within our resources to track the current clinical trends and scientific advances in the prevention and fight against this disease.

As a platform for this forum HealthPlexus.NET and JCCC will offer one of the most advanced content management systems to deliver and disseminate educational material to healthcare professionals.

We are seeking to identify among our readers those who can offer an intellectual contribution to this resource either as a writer, reviewer or an editor.

If you think you can contribute to this initiative or if you know of an educational institution that would be interested to partner with us, please contact us at publisher@healthplexus.net.

We welcome your comments below.

Sincerely,

HealthPlexus.NET